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Lupus Ontario Podcast

Lupus Ontario Podcast

By Lupus Ontario
We seek to raise awareness and education of Lupus globally by speaking with medical professionals, physicians, researchers and patients to better understand the lupus journey, diagnosis and treatments.

For more information about Lupus and Lupus Ontario, please visit Lupus Ontario at www.lupusontario.org, or follow us on Instagram, Twitter, Facebook or YouTube.

We'd love to hear from you! If you have topic suggestions for the podcast, reach out to us at podcast@lupusontario.org.
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Lupus Ontario Podcast Trailer

Lupus Ontario Podcast

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Lupus From The Physician Perspective, With Dr. Konstantinos Tselios
Our extra special guest today is Dr. Konstantinos Tselios. Not just a Rheumatologist and specialist when it comes to the diagnosis and treatment of Lupus patients, Dr. Tselios is also an Assistant Professor with the Division of Rheumatology, Department of Medicine, at McMaster University in Hamilton, Ontario.  Dr. Tselios joins us to talk about the medical journey a Lupus patient can go through, during and after diagnosis - but through the lens of the physician.  We talk about everything from the the patient-doctor relationship, how much information a Rheumatologist may receive about a patient upon referral, the impact some medications can have over time, through to the areas Lupus research is focusing on today. We also have a fascinating conversation about his most recent endeavour to uncover the mysteries of Lupus and improve both research and treatment - the creation of the Lupus Ontario Anne Matheson Biobank. Development of the Biobank is underway, it is designed to collect and store samples and be a central repository from which future research can be derived. The Biobank hopes to start receiving the first collection of samples in early 2022. Join us on this exciting conversation where we get a feel for what the physician goes through along the Lupus journey with patients, as well as insights into the cutting edge of Lupus research! If you have comments or suggestions please write to us: podcast@lupusontario.org. Want to get in touch with Lupus Ontario? Reach out to us at: support@lupusontario.org.
50:23
October 21, 2021
Student Life - Joy Philips and The Motivational Power An Illness Can Have
Today we speak with Joy Philips. Joy has a passion for dance and theatre, so much so that she had crafted her vision of her future around this passion and pursued it at the prestigious Randolph College For The Performing Arts in Toronto. However, being diagnosed with Lupus and confronted with the symptoms of the disease, Joy found herself having to pivot from the path of her dreams to something else. Recognizing her innate ability to research her own diagnosis, as well as her curiosity about seemingly all things medical, Joy leveraged her Lupus diagnosis into a powerful motivator to alter her career path toward science and indeed medicine. Joy returned to school after having been diagnosed. She attend the University of Toronto and studied in Biology and Bioethics. Joy currently works as part of a dedicated team at The Hospital For Sick Children (SickKids) in Toronto, studying metabolism. Join us as we talk about what making that academic and career pivot was like, and how attending university for a second time, but now with Lupus, altered her path forward. If you have comments or suggestions please write to us: podcast@lupusontario.org. Want to get in touch with Lupus Ontario? Reach out to us at: support@lupusontario.org. **Reminder, Lupus Ontario cannot offer medical advice, but may be able to offer resources to help you better engage in your care.
36:36
September 27, 2021
Student Life - Meghan Wynne on Taking A Year Off and The Life Lessons Lupus Can Teach Us
Meghan is a recent graduate of the Bachalor of Commerce (BCom) program at the University of Ottawa. In our conversation Megan shares the immense struggle that students can deal with when considering taking time off of school, but also the growth that can come from it. We also talk about everything from sports, to residence life, and asking professors for assistance with exams. The conversation is jam-packed full of insights and advice that can be applied both inside and outside of a university or college lecture hall and dorm. This is an amazing conversation that you will come away from with valuable, practical advice for so many situations. If you have comments or suggestions please write to us: podcast@lupusontario.org. Want to get in touch with Lupus Ontario? Reach out to us at: support@lupusontario.org. **Reminder, Lupus Ontario cannot offer medical advice, but may be able to offer resources to help you better engage in your care.
42:57
September 13, 2021
Student Life - Hunter Hogarth and The Power of Staying Positive
Hello and welcome to the Lupus Ontario Podcast. With the return to school upon us for so many in Ontario, throughout the month of September we will be speaking with students to share what life with lupus is like as they strive to succeed in academics and with student life. If you are at all interested in understanding what student life can be like while confronting an illness, then you’ll find our conversations absolutely fascinating. Hunter Hogarth begins our series. Hunter is entering his 3rd year at Queens University studying Biology. Hunter takes us through his journey of being diagnosed with lupus at a very young age, as well as battling other conditions at the time of diagnosis such as Chorea. He speaks about the power of keeping a positive outlook, as well as the desire to give back to SickKids Hospital where the medical professionals had such a profound impact on him at an early age. If you have comments or suggestions please write to us: podcast@lupusontario.org. Want to get in touch with Lupus Ontario? Reach out to us at: support@lupusontario.org. **Reminder, Lupus Ontario cannot offer medical advice, but may be able to offer resources to help you better engage in your care.
22:01
September 6, 2021
Life With Lupus - Yadi's Story
Today on the podcast I have an extra special guest. If you are at all interested in understanding some of the difficulty in diagnosing lupus, the toll that can take on an individual or perhaps you are dealing with lupus and its effect on multiple organ systems – then you will find the following conversation to be incredibly enlightening. Yadi Castro was diagnosed with lupus 8 years ago however, her journey to that diagnosis was quite remarkable. Misdiagnosed a number of times from having an ailment with her gallbladder through to leukemia and even having undergone surgeries, Yadi’s story illustrates the sometimes elusive nature in obtaining an official lupus diagnoses and underscores the intense toll that lupus can take on an individual and their family. Though the conversation with Yadi is somewhat brief, she will be joining us again later to better explore her story in more detail – starting from the very beginning of when symptoms first began, what they were and how her journey evolved to the official diagnosis of lupus. If you have comments or suggestions about the podcast, let us know: podcast@lupusontario.org. Wanting to get in touch with Lupus Ontario? Visit us at www.lupusontario.org or reach out to us at support@lupusontario.org. **Reminder, Lupus Ontario cannot offer medical advice, but may be able to offer resources to help you better engage in your care.
13:31
August 20, 2021
What Joining Lupus Ontario Is Like and Joining The Walk For Lupus
In this episode we speak with two long time members of Lupus Ontario: Sandra Williams-Reid and Laura Piccione. Sandra has experienced everything from coming to Lupus Ontario as a Lupus patient with questions and concerns regarding her diagnosis more than 30 years ago, through to becoming an active member of the Lupus community and serving on the Board of Lupus Ontario. Similarly, Laura Piccione has been involved with Lupus Ontario for nearly a decade and is support group facilitator in the Durham Region of Ontario. Today, Sandra and Laura share a bit of their Lupus story with us, and how that journey brought them to Lupus Ontario. They share how their own struggle with Lupus motivated them to help raise awareness and offer support to others going through a similar journey. If you have comments or suggestions about the podcast, let us know: podcast@lupusontario.org. Wanting to get in touch with Lupus Ontario? Reach out to us at: support@lupusontario.org. **Reminder, Lupus Ontario cannot offer medical advice, but may be able to offer resources to help you better engage in your care.
21:12
August 16, 2021
Introducing Lupus Ontario and the Walk For Lupus
Welcome to the inaugural episode of the Lupus Ontario podcast! In part one of this episode we speak with Linda Keill, Board President at Lupus Ontario (LO), to gain insight into what Lupus Ontario does, how it came to be, and how LO works to improve the lives of those diagnosed with Lupus.  Part two of the episode offers some insights into the Walk For Lupus. A milestone, this August is the 20th annual Walk For Lupus. The Walk is designed to further understanding and visibility of Lupus, as well as bring the community together. As was the case in 2020, this year the Walk will be held virtually due to COVID-19 public health guidelines. If you have comments or suggestions about the podcast, let us know: podcast@lupusontario.org. Wanting to get in touch with Lupus Ontario? Reach out to us at: support@lupusontario.org. **Reminder, Lupus Ontario cannot offer medical advice, but may be able to offer resources to help you better engage in your care. 
24:41
August 9, 2021
Lupus Ontario Podcast Trailer
Introducing the Lupus Ontario podcast! For more information about Lupus and Lupus Ontario, please visit Lupus Ontario at www.lupusontario.org, or follow us on Instagram, Twitter or Facebook. We'd love to hear from you! If you have topic suggestions for the podcast, reach out to us at podcast@lupusontario.org. 
00:60
June 11, 2021