Lupus Speaks Podcast

In this episode of the Lupus Speaks Podcast host Shedrica Shante interviews Dr. Jasmine Kearse, a psychiatrist and lupus warrior. Dr. Kearse shares her journey with lupus, from experiencing symptoms as a child to receiving a diagnosis in 2017. She discusses the challenges she faced, including temporary blindness and right-sided weakness.

Dr. Kearse also talks about her experience with lupus during pregnancy and the impact it had on her mental health. As a psychiatrist, she emphasizes the importance of addressing mental health issues in lupus patients and encourages seeking help from professionals.

In this conversation, Dr. Jasmine Kearse discusses the importance of seeking mental health support for those with lupus. She emphasizes the role of a psychiatrist in providing support and listening to patients.

Dr. Kearse suggests reaching out to celebrities with lupus to raise awareness and create solidarity within the community. She shares her personal experiences and encourages others to share their stories as well.

The conversation highlights the power of encouragement and supporting each other. Dr. Kearse calls out celebrities like Nick Cannon, Snoop Dogg, and Meg Thee Stallion to use their platforms to bring awareness to lupus.

The conversation also addresses common misconceptions and stigma surrounding lupus and discusses the importance of mourning the loss of functionality while finding strength.

Finally, Dr. Kearse and Shedrica Shant’e discuss the need for collaboration and education to support those with lupus.

Takeaways

Lupus can present with a wide range of symptoms, including fatigue, joint pain, and temporary blindness.
Diagnosing lupus can be challenging, and it often takes time for patients to receive a proper diagnosis.
Pregnancy can be difficult for lupus patients, and it is important to closely monitor both physical and mental health during this time.

Addressing mental health is crucial for lupus patients, as depression, anxiety, and psychosis can be common. Seeking mental health support is important for those with lupus.
A psychiatrist plays a crucial role in providing support and listening to patients.
Reaching out to celebrities with lupus can help raise awareness and create solidarity within the community.
Sharing personal experiences and supporting each other is essential in dealing with lupus.

Mourning the loss of functionality is okay, and finding strength in the face of lupus is important.
Collaboration and education are key in supporting those with lupus.

You can follow Dr. Jamine @alignedcongnition on instagram.

In this episode, Brittany Smith shares her journey with lupus and how it has influenced her as an influencer. She discusses the challenges of being a mom with lupus and the unique experiences of being diagnosed at a young age. Brittany also talks about the impact of social media on the lupus community and the importance of finding support and inspiration from others. She emphasizes the role of faith in overcoming challenges and trusting in God. In this conversation, Shedrica and Brittany discuss various topics related to personal growth, relationships, self-love, and living with lupus. They explore the importance of overcoming attachment styles and recognizing self-worth. Brittany shares her journey of building self-confidence and learning to love herself. Shedrica emphasizes the significance of aligning one's self-perception with how God sees them. They also discuss the challenges of navigating relationships while managing chronic illness and the importance of choosing a supportive partner. Brittany provides insights into becoming an influencer and coping with hair-related changes. She also shares her experiences as a flight attendant with lupus. Finally, they discuss the importance of showcasing one's entire life and not just focusing on the challenges of living with lupus. In this conversation, Brittany Smith and Shedrica Shant’e discuss the importance of embracing vulnerability and overcoming fear. They emphasize the power of authenticity and self-acceptance in personal growth and relationships. They also share their experiences with online criticism and the importance of building resilience. The conversation highlights the significance of having faith and trusting in God's timing. They explore the difference between helping and supporting others and the importance of embracing imperfections and enjoying life. They discuss the challenges of introducing lupus and personal life to partners and the journey of building confidence and showing vulnerability in relationships. The conversation concludes with a reminder to trust the process, let go of anxiety, and recognize and embrace one's importance. You can follow Brittany @lupusfiasco on Instagram and TikTok

Summary

In this episode, Shedrica shares her personal experiences with lupus symptoms and the lessons she has learned along the way. She discusses the challenges of fatigue, joint pain, skin rash, hair loss, physical rehabilitation, grief, shame, depression, financial burden, and cognitive dysfunction. She emphasizes the importance of listening to your body, seeking support, and taking care of your mental health. Shedrica also provides practical tips for managing symptoms and navigating the financial aspects of living with lupus.

Takeaways

Listen to your body and prioritize rest when experiencing fatigue.
Seek support from therapists and coaches to navigate the emotional challenges of living with lupus.
Create a budget and manage your finances to alleviate the financial burden of treatment.
Use tools like planners and to-do lists to manage cognitive dysfunction and stay focused.

Chapters

00:00 Introduction
01:47 Fatigue
04:15 Joint Pain
07:00 Skin Rash
10:24 Hair Loss
13:27 Physical Rehabilitation
15:35 Grief and Shame
19:25 Financial Burden
23:37 Cognitive Dysfunction

Follow Shedrica on instagram @lupusspeaks for more lupus related topics and tips.

Summary

In this episode of the Lupus Speaks podcast, host Shedrica Shant’e interviews Salathiel Deloach, the founder of the Deloach Lupus Foundation of Savannah, Georgia. They discuss Salathiel's journey with lupus, her decision to start her own foundation, and the challenges of balancing health needs with advocacy work.
Salathiel shares advice for other lupus warriors and highlights the impact of her advocacy efforts on the lupus community.
They also discuss upcoming lupus walks and community engagement initiatives. The episode concludes with Salathiel sharing her current reading and expressing gratitude for the opportunity to share her story.

Takeaways

Lupus warriors should not doubt themselves and should pursue their dreams and become advocates, leaving an impact and legacy despite the challenges of the disease.
Building a support network and connecting with other lupus warriors is crucial for navigating the journey and finding resources.
Advocacy efforts can have a significant impact on the lupus community, providing support, resources, and raising awareness.
Balancing health needs with advocacy work requires listening to one's body, communicating with others, and being intentional about self-care.
Community engagement, such as organizing lupus walks, can help raise awareness and provide a sense of unity among lupus warriors.

Chapters

00:00 Introduction and Connection
00:32 Journey with Lupus
03:00 Realizing Lupus Wouldn't Define Limitations
04:20 Starting the Daloach Lupus Foundation
06:05 Balancing Health Needs with Advocacy
10:16 Advice for Lupus Warriors
15:45 Impact of Advocacy Efforts
18:08 Lupus Walks and Community Engagement
20:11 Finding the Deloach Lupus Foundation
21:03 Current Reading and Conclusion

" Tips and Collaborations"
🎙️ Introduction:
Welcome back to another empowering episode of Lupus Speaks, where we navigate the journey of living with lupus with resilience and positivity. In this episode, we'll dive into practical tips to smoothly transition into the new year while managing lupus, and exciting collaborations with fellow lupies that will inspire and uplift you.
Lupus-Friendly New Year Tips:
Explore practical and achievable tips to make the transition into the new year smoother for the lupus community. From setting realistic goals to incorporating self-care routines, we'll discuss strategies to embrace the upcoming year with hope and resilience.

Exciting Announcements and Future Plans:
Get ready for some exciting announcements! We'll share upcoming projects, events, and collaborations that will bring the lupus community closer together. Learn how you can actively participate and contribute to the growth and empowerment of the lupus community.
🎧 Closing Thoughts:
As we wrap up this episode, remember that you are not alone on this journey. Embrace the new year with a positive mindset, take on challenges with resilience, and continue to build a supportive network within the lupus community.
Thank you for tuning in to Lupus Speaks, where your journey with lupus is celebrated, and your strength is acknowledged.

In this special Lupus Speaks Podcast episode, I had the pleasure of chatting with Janay Townes about her upcoming holiday special in December. We delved into Lupies Unite and the advocacy work she’s passionately involved in. Join us for a heartfelt conversation that celebrates unity within the lupus community and sheds light on important advocacy efforts. Stay tuned for a dose of inspiration and insights as we navigate the holiday season together. Lupus speaks, and together we make a difference! 🎙️✨ #LupusSpeaks #LupiesUnite #AdvocacyJourney

Learn vital lessons on the Lupus journey: Stop skipping meds, seek support, prioritize self-care, and listen to your body.

In this empowering episode of Lupus Speaks, hosted by Shedrica Holmes, we dive deep into the incredible journey of overcoming Lupus and the many challenges that come with it. Shedrica, a dedicated Lupus warrior herself, shares her personal insights and experiences, offering hope and inspiration to fellow warriors and anyone facing life's obstacles.
Explore the resilience that resides within every Lupus warrior as Shedrica discusses the strategies and mindset shifts that have helped her navigate the ups and downs of living with this chronic condition. Shedrica's unwavering spirit shines as she discusses her journey, providing a beacon of light for those in the Lupus community.
Whether you're facing Lupus or any other challenge in life, this episode will leave you with a renewed sense of hope and determination. Shedrica Holmes and Lupus Speaks are here to remind you that, together, we can conquer even the most formidable obstacles.
Tune in and be inspired to face your challenges head-on, armed with the knowledge that you are not alone in your journey to a brighter, healthier future.

In this long-awaited return episode, join us as Shedrica Holmes, a devoted stay-at-home mom and Lupus warrior, takes us on a heartfelt journey through the past three years. Shedrica shares her personal triumphs and challenges since 2020, offering a candid look into her life and her family's journey.
Discover how Shedrica has been managing her current Lupus flare and the lessons she's learned along the way. But that's not all! The future of Lupus Speaks holds exciting promises. Shedrica shares her vision for Season 2, including interviews with fellow Lupus warriors and practical tips for living life to the fullest while managing this chronic condition.
Tune in to this episode for a candid, heartwarming, and inspiring conversation that sets the stage for an incredible journey ahead. Whether you're a Lupus warrior yourself or simply seeking motivation and encouragement, Lupus Speaks, hosted by Shedrica Holmes, is here to uplift, empower, and support you on your own journey.
Join us for Season 2 of Lupus Speaks, and together, let's embrace life with strength, resilience, and a community of warriors by our side.

I’m doing a quick PSA on things that you should buy before it’s too late. Also a announcement on things to come for the podcast and where I’ve been all this time.

Things I wish I knew when I was first discovered I had lupus. These are just some tips of things I picked up along the way. I hope you enjoy them.

This episode we talk about the importance of gut health and what we can use to improve our gut to reduce inflammation in the body which is major with lupus.

This is just a little taste of what to expect from the show.