Lupus Speaks Podcast
By Shedrica Holmes
Join us on a transformative journey where resilience meets inspiration.
Amplifying voices, challenging stereotypes, and fostering connections within the lupus community.
Redefine possibilities with stories of triumph. Every voice, every journey deserves to be heard.
Lupus Speaks—your platform for strength, creativity, and empowerment.
For more info and show notes, visit www.lupusspeaks.org.
Lupus Speaks Podcast Mar 20, 2024
Support and Empowerment for Lupus Warriors with Brieana Salter
Brieana explains how she incorporates these lessons into the programs offered by the Lupie Girl, including the Survivor Circle and care kits. She also highlights the annual brunch and community events that provide support and raise awareness for lupus.
Brieana offers advice for starting a nonprofit and shares her experience with medical treatments such as dialysis and kidney transplants.
In this conversation, Brieana Salter discusses the medications she takes for lupus nephritis and its symptoms. She talks about the importance of Plaquenil for inflammation, the challenges of stopping Prednisone due to adrenal gland addiction, and the need for blood thinners and phosphate binders for dialysis.
Brieana also shares her experience with pain medication for neuropathy and the additional medications required for dialysis. She emphasizes the support and understanding she receives from her family and the importance of finding strength and courage in the face of lupus.
Brieana highlights the lack of understanding of lupus among medical professionals and the need for advocacy and support. She encourages individuals with lupus to believe in themselves, rest, and surround themselves with supportive people. Brieana invites listeners to connect with The Lupie Girl through their website and social media channels.
Takeaways
Plaquenil is an important medication for managing inflammation in lupus nephritis.
Prednisone can lead to adrenal gland addiction, making it difficult to stop taking the medication abruptly.
Blood thinners and phosphate binders are necessary for managing the complications of lupus nephritis and dialysis.
Pain medication, such as Percocet and Gabapentin, can help alleviate neuropathy symptoms in lupus.
Support from family and loved ones is crucial in navigating the challenges of living with lupus.
Timely diagnosis of lupus is essential for receiving appropriate treatment and support.
There is a lack of understanding of lupus among medical professionals, highlighting the need for increased awareness and education.
Believing in oneself, resting, and surrounding oneself with supportive people are key in finding strength and courage while living with lupus.
I want to extend an invitation to our amazing listeners. If you've been inspired by today's conversation and want to dive deeper into topics like chronic illness empowerment and entrepreneurship, there are several ways you can continue the journey with us.Firstly, join our vibrant community over at the Lupie Boss Academy Facebook group. It's a space where warriors like us come together to share resources, support one another, and thrive despite the challenges we face. You can join by visiting https://www.facebook.com/groups/lupiebossacademy/Next, if you want to stay updated on all things Lupus Speaks Podcast and engage in discussions with fellow listeners, be sure to join our Facebook group. Connect with like-minded individuals, share your thoughts, and continue the conversation by visiting www.facebook.com/lupusspeaksIf you're a part of a community event, workshop, or webinar related to chronic illness, entrepreneurship, or empowerment, we want to hear from you! Submit your event to us, and we'll share it on an upcoming episode of the Lupus Speaks Podcast. Simply reach out to us at lupusspeaks@gmail.com with details about your event.Lastly, if you were inspired by our guest and want to learn more about their services or connect with them directly, you can reach out to them at
THE LUPIEGIRL, INC. - Home
Thank you for tuning in today! Your support means the world to us. Remember, together, we are unstoppable. Until next time, peace and be intentional.---
Non-Negotiable Health Habits with Tanya Freirich
Living with Lupus: Insights from Michelle Mitchell's Diagnosis and Journey
Michelle shares her journey of how she unexpectedly became a teacher after studying fashion marketing and management. She discusses how she manages both professions while prioritizing her health and self-care.
Michelle also talks about how her background in the beauty industry has influenced her approach to self-expression and confidence, especially while living with lupus. She shares insights into her lupus diagnosis, the struggles she faced with mobility, and the importance of finding a supportive community.
Michelle also discusses her passion for content creation and her desire to work with the lupus community to provide education and support.
I want to extend an invitation to our amazing listeners. If you've been inspired by today's conversation and want to dive deeper into topics like chronic illness empowerment and entrepreneurship, there are several ways you can continue the journey with us.Firstly, join our vibrant community over at the Lupie Boss Academy Facebook group. It's a space where warriors like us come together to share resources, support one another, and thrive despite the challenges we face. You can join by visiting https://www.facebook.com/groups/lupiebossacademy/Next, if you want to stay updated on all things Lupus Speaks Podcast and engage in discussions with fellow listeners, be sure to join our Facebook group. Connect with like-minded individuals, share your thoughts, and continue the conversation by visiting www.facebook.com/lupusspeaksAnd for those of you looking to take actionable steps towards building your digital business or expanding your knowledge, don't miss out on our UBC course and Lupus Speaks Digital Biz store. Whether you're interested in launching your own digital products or growing your online presence, we have resources tailored just for you. Learn more about the course and explore our digital products by visiting lupusspeaks.bio/shop/9209c6f1-517f-4980-a61e-6905ccf48784If you're a part of a community event, workshop, or webinar related to chronic illness, entrepreneurship, or empowerment, we want to hear from you! Submit your event to us, and we'll share it on an upcoming episode of the Lupus Speaks Podcast. Simply reach out to us at lupusspeaks@gmail.com with details about your event.Lastly, if you were inspired by our guest and want to learn more about their services or connect with them directly, you can reach out to them on Instagram @chelleydenaebeautyThank you for tuning in today! Your support means the world to us. Remember, together, we are unstoppable. Until next time, peace and be intentional.---
Use Your Story to Build a Brand with Kelly Hanson-Lawrie
Why aren’t More Lupies talking about this? with Shedrica
The Power of Gratitude with Tenille Stewart
In this episode of Lupus Speaks podcast, Tenille Stewart, a lupus survivor, shares her journey of being diagnosed with lupus at 19 and how she turned her experience into a business. She talks about her battle with lupus, the impact it had on her life, and the challenges she faced. Tenille also discusses her decision to adopt a vegan lifestyle and how it has positively impacted her health. She emphasizes the importance of staying committed to the vegan lifestyle and shares tips on how to do so. Tenille Stewart emphasizes the importance of practicing gratitude in everyday life. She shares her personal routine of starting each day with devotional and gratitude affirmations, and expressing gratitude for every part of her body. Tenille believes that gratitude is essential for living a full life, even with chronic illness. She also discusses the significance of surrounding oneself with positive energy and supportive people. Tenille encourages listeners to go after their goals and not let sickness define them. She shares her various businesses and invites listeners to connect with her on social media. Tenielle Stewart @tenille_thecaption Click the links to all the things mentioned in the episode below:
Lupus Speaks Digital Biz: For Digital Products & Freebies
Lupie Boss Academy Facebook Group
The Girlfriend's Guide To Lupus By: Amanda Chay
To be Featured on the show please send me an email for event submissions and general inquires. lupusspeaks@gmail.com
*Please Note you Must include the flyer with the details of your event.
As always please follow the show on Apple Podcast and on social media. @lupusspeaks
Mental Health Support with Dr. Jasmine Kearse
Dr. Kearse also talks about her experience with lupus during pregnancy and the impact it had on her mental health. As a psychiatrist, she emphasizes the importance of addressing mental health issues in lupus patients and encourages seeking help from professionals.
In this conversation, Dr. Jasmine Kearse discusses the importance of seeking mental health support for those with lupus. She emphasizes the role of a psychiatrist in providing support and listening to patients.
Dr. Kearse suggests reaching out to celebrities with lupus to raise awareness and create solidarity within the community. She shares her personal experiences and encourages others to share their stories as well.
The conversation highlights the power of encouragement and supporting each other. Dr. Kearse calls out celebrities like Nick Cannon, Snoop Dogg, and Meg Thee Stallion to use their platforms to bring awareness to lupus.
The conversation also addresses common misconceptions and stigma surrounding lupus and discusses the importance of mourning the loss of functionality while finding strength.
Finally, Dr. Kearse and Shedrica Shant’e discuss the need for collaboration and education to support those with lupus.
Takeaways
Lupus can present with a wide range of symptoms, including fatigue, joint pain, and temporary blindness.
Diagnosing lupus can be challenging, and it often takes time for patients to receive a proper diagnosis.
Pregnancy can be difficult for lupus patients, and it is important to closely monitor both physical and mental health during this time.
Addressing mental health is crucial for lupus patients, as depression, anxiety, and psychosis can be common. Seeking mental health support is important for those with lupus.
A psychiatrist plays a crucial role in providing support and listening to patients.
Reaching out to celebrities with lupus can help raise awareness and create solidarity within the community.
Sharing personal experiences and supporting each other is essential in dealing with lupus.
Mourning the loss of functionality is okay, and finding strength in the face of lupus is important.
Collaboration and education are key in supporting those with lupus.
You can follow Dr. Jamine @alignedcongnition on instagram.
Exploring Lupus Diet & Holistic Nutrition with Genny Mack
Genny also provides practical advice for consistency in nutrition and simplifying food preparation. In this conversation, Shedrica Shant’e and Genny Mack discuss overcoming trauma, finding purpose, and the power of sharing stories. They also explore the importance of spiritual connection, emotional healing, and discovering life's purpose.
Genny Mack shares her future projects and goals, including creating an empowerment circle for people with lupus. They also discuss the financial burden of living with lupus and the need for financial stability. Finally, they highlight how others can get involved and benefit from Genny Mack's services.
Takeaways
Holistic nutrition can have a significant impact on managing lupus symptoms and improving overall health.
A whole-body approach to healing, including addressing emotional traumas and listening to one's intuition, is essential for optimal well-being.
Consistency in nutrition can be achieved by making a commitment, finding an accountability partner, and starting with one goal at a time.
Simplifying food preparation by buying pre-prepared whole foods can save time and make healthy eating more accessible. Overcoming trauma and finding purpose can lead to personal growth and the ability to help others.
Sharing stories can provide validation, support, and inspiration to those who are going through similar experiences.
Finding spiritual connection can provide comfort, validation, and a sense of purpose.
Emotional healing is essential for overall well-being and can lead to a deeper understanding of oneself.
Discovering life's purpose often involves tapping into one's passions and using personal experiences to make a positive impact.
Financial stability is a significant challenge for many individuals with lupus, and finding ways to generate income and manage finances is crucial.
Getting involved with Genny Mack's services, such as following her on social media and subscribing to her newsletter, can provide valuable information and support for holistic healing.
Instagram @gennymack_
www.gennymack.com/
Embracing Vulnerability and Overcoming Fear with Brittany Smith
10 Things I wish I knew (Symptoms Edition)
In this episode, Shedrica shares her personal experiences with lupus symptoms and the lessons she has learned along the way. She discusses the challenges of fatigue, joint pain, skin rash, hair loss, physical rehabilitation, grief, shame, depression, financial burden, and cognitive dysfunction. She emphasizes the importance of listening to your body, seeking support, and taking care of your mental health. Shedrica also provides practical tips for managing symptoms and navigating the financial aspects of living with lupus.
Takeaways
Listen to your body and prioritize rest when experiencing fatigue.
Seek support from therapists and coaches to navigate the emotional challenges of living with lupus.
Create a budget and manage your finances to alleviate the financial burden of treatment.
Use tools like planners and to-do lists to manage cognitive dysfunction and stay focused.
Chapters
00:00 Introduction
01:47 Fatigue
04:15 Joint Pain
07:00 Skin Rash
10:24 Hair Loss
13:27 Physical Rehabilitation
15:35 Grief and Shame
19:25 Financial Burden
23:37 Cognitive Dysfunction
Follow Shedrica on instagram @lupusspeaks for more lupus related topics and tips.
The Importance of Energy Medicine With Coach Lizeth Santamaria
In this episode of the Lupus Speaks podcast, host Shedrica Shant’e interviews Coach Lizeth Santamaria about her journey with lupus and how it has influenced her career path. Lizeth shares her personal goals and the importance of finding balance and alignment in life. She also discusses the impact of lupus on her health and well-being, and how she found her purpose as a lupus coach and holistic health practitioner.
Lizeth explains the concept of energy medicine and how it can help restore balance and healing in the body. The conversation highlights the importance of support, healing from trauma, and the power of planning and managing lupus. In this conversation, Lizeth Santamaria and Shedrica Shant’e discuss various aspects of living with lupus and the importance of self-care. They also touch on the financial side of dealing with lupus and the challenges it can bring.
Lizeth shares her journey as an influencer and how she uses social media to connect with others in the lupus community. They also discuss the benefits of working from home and being able to control one's schedule. Lizeth emphasizes the importance of feeling seen and supported, and shares her final message of advice for those living with lupus. She also provides information on where to find and connect with her.
Takeaways
Finding balance and alignment in life is important for overall well-being, especially for individuals with lupus.
Lupus can influence career paths and lead individuals to explore new avenues, such as becoming a lupus coach or holistic health practitioner.
Healing from trauma is an essential part of the healing journey for individuals with lupus, and energy medicine can be a powerful tool in this process.
Support from others, both within the lupus community and through professional guidance, can be instrumental in managing lupus and achieving personal goals.
Planning and organization are key in managing lupus and maintaining a healthy lifestyle. Self-care is essential for managing lupus and prioritizing oneself is not selfish.
Working from home can provide flexibility and control over one's schedule, which is beneficial for those with lupus.
Feeling seen and supported is important for individuals living with lupus.
Exploring holistic methods and being open to different approaches to healing can be beneficial for managing lupus.
Listening to your body and advocating for yourself in terms of medication and lifestyle choices is crucial for managing lupus.
Chapters
00:00 Introduction and Bucket List
03:29 Journey with Lupus and Career Path
10:28 Diagnosis and Impact on Life
18:06 Importance of Support and Energy Medicine
25:05 Healing from Trauma and Finding Purpose
32:09 Empowerment and Overcoming Challenges
37:04 Planning and Managing Lupus
40:22 Self-care and Prioritizing Yourself
41:23 Pouring Into Yourself
42:18 Financial Side of Dealing with Lupus
43:39 Being an Influencer
45:34 Working from Home and Controlling Schedule
48:17 Feeling Seen and Supported
49:44 Final Message or Piece of Advice
53:26 Where to Find and Connect with Lizeth
54:47 Discover Your Power
55:12 Closing Remarks
For more info you can find Coach Lizeth on social media @thelupuscoach Discover Your Power with Coach Lizeth www.thelupuscoach.com/
From Diagnosis to Advocacy with Salathiel Deloach
In this episode of the Lupus Speaks podcast, host Shedrica Shant’e interviews Salathiel Deloach, the founder of the Deloach Lupus Foundation of Savannah, Georgia. They discuss Salathiel's journey with lupus, her decision to start her own foundation, and the challenges of balancing health needs with advocacy work.
Salathiel shares advice for other lupus warriors and highlights the impact of her advocacy efforts on the lupus community.
They also discuss upcoming lupus walks and community engagement initiatives. The episode concludes with Salathiel sharing her current reading and expressing gratitude for the opportunity to share her story.
Takeaways
Lupus warriors should not doubt themselves and should pursue their dreams and become advocates, leaving an impact and legacy despite the challenges of the disease.
Building a support network and connecting with other lupus warriors is crucial for navigating the journey and finding resources.
Advocacy efforts can have a significant impact on the lupus community, providing support, resources, and raising awareness.
Balancing health needs with advocacy work requires listening to one's body, communicating with others, and being intentional about self-care.
Community engagement, such as organizing lupus walks, can help raise awareness and provide a sense of unity among lupus warriors.
Chapters
00:00 Introduction and Connection
00:32 Journey with Lupus
03:00 Realizing Lupus Wouldn't Define Limitations
04:20 Starting the Daloach Lupus Foundation
06:05 Balancing Health Needs with Advocacy
10:16 Advice for Lupus Warriors
15:45 Impact of Advocacy Efforts
18:08 Lupus Walks and Community Engagement
20:11 Finding the Deloach Lupus Foundation
21:03 Current Reading and Conclusion
Embracing a New Year with Lupus
🎙️ Introduction:
Welcome back to another empowering episode of Lupus Speaks, where we navigate the journey of living with lupus with resilience and positivity. In this episode, we'll dive into practical tips to smoothly transition into the new year while managing lupus, and exciting collaborations with fellow lupies that will inspire and uplift you.
Lupus-Friendly New Year Tips:
Explore practical and achievable tips to make the transition into the new year smoother for the lupus community. From setting realistic goals to incorporating self-care routines, we'll discuss strategies to embrace the upcoming year with hope and resilience.
Exciting Announcements and Future Plans:
Get ready for some exciting announcements! We'll share upcoming projects, events, and collaborations that will bring the lupus community closer together. Learn how you can actively participate and contribute to the growth and empowerment of the lupus community.
🎧 Closing Thoughts:
As we wrap up this episode, remember that you are not alone on this journey. Embrace the new year with a positive mindset, take on challenges with resilience, and continue to build a supportive network within the lupus community.
Thank you for tuning in to Lupus Speaks, where your journey with lupus is celebrated, and your strength is acknowledged.
Interview with Janay Townes Lupiesunite
Coping With Depression
In this deeply insightful episode of Lupus Speaks, Shedrica opens up a heartfelt dialogue about the often unspoken challenges of depression within the lupus community. Living with lupus is a daily test of resilience, and Shedrica intimately shares her experiences, offering a raw and honest perspective.
Join Shedrica as she candidly explores the intersection of lupus and depression, sharing personal stories and practical coping strategies. Special guests, [if applicable], bring their expertise to the table, providing valuable insights into mental health and lupus.
This episode doesn't just illuminate the shadows; it also serves as a beacon of hope. Shedrica discusses coping mechanisms, shares stories of resilience, and guides listeners on how to build a supportive community that understands the unique challenges faced by those navigating lupus and depression.
Whether you're personally affected or supporting a loved one, Shedrica's episode is a reminder that no one is alone in this journey.
Tune in, engage with the Lupus Speaks community, and let Shedrica's wisdom and compassion help you navigate through the shadows together.
Things I realized I needed to STOP Doing
Planning & Productivity
Join me as I share practical tips for balancing daily tasks, conserving energy, and setting achievable goals. I’ll discuss creative planning techniques to help you stay organized and in control of your life, even on tough lupus days.
I’ll be sharing my personal insights and experiences as I navigate life with lupus and work towards building a supportive community for fellow patients. Don’t miss this empowering and informative episode!
Remember to follow us on social media @lupusspeaks and visit our website at www.lupusspeaks.org for more lupus-related content and resources. Thank you for joining me on this journey of empowerment, advocacy, and inspiration
Overcoming Challenges with Lupus
Explore the resilience that resides within every Lupus warrior as Shedrica discusses the strategies and mindset shifts that have helped her navigate the ups and downs of living with this chronic condition. Shedrica's unwavering spirit shines as she discusses her journey, providing a beacon of light for those in the Lupus community.
Whether you're facing Lupus or any other challenge in life, this episode will leave you with a renewed sense of hope and determination. Shedrica Holmes and Lupus Speaks are here to remind you that, together, we can conquer even the most formidable obstacles.
Tune in and be inspired to face your challenges head-on, armed with the knowledge that you are not alone in your journey to a brighter, healthier future.
The Return-Life Update Since 2020 & What's Next
Discover how Shedrica has been managing her current Lupus flare and the lessons she's learned along the way. But that's not all! The future of Lupus Speaks holds exciting promises. Shedrica shares her vision for Season 2, including interviews with fellow Lupus warriors and practical tips for living life to the fullest while managing this chronic condition.
Tune in to this episode for a candid, heartwarming, and inspiring conversation that sets the stage for an incredible journey ahead. Whether you're a Lupus warrior yourself or simply seeking motivation and encouragement, Lupus Speaks, hosted by Shedrica Holmes, is here to uplift, empower, and support you on your own journey.
Join us for Season 2 of Lupus Speaks, and together, let's embrace life with strength, resilience, and a community of warriors by our side.
Life Update:Trauma During Pandemic & Upcoming Episodes
This episode is a update of my life and what I’ve been up to since March. I’m sharing what happened and what I’ve learned during the pandemic and Covid.
-Lupus Flair symptoms and new medicines that I’ve been using to treat lupus.
-Weight gain and being uncomfortable
-Breakup and the trauma and stress from that.
-Upcoming events and interviews for the podcast
-Creativity during the pandemic
-What I’ve not been doing
Shop The Collection:
Faith-Filled Creations Devotional Journal and Wellness Day Planner
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Drica Plans With Lupus
YouTube Channel/Planner Videos
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Follow me on Instagram @Lupusspeaks www.instagram.com/lupusspeaks/
m.facebook.com/lupusspeaks
Thanks for listening and tuning in.
Peace and be intentional