The fault in our genes
By Maggie Moore
Spinal Muscular Atrophy and my experience as a mother of a type 1 baby. A mother to a kid with a rare genetic disorder.
The fault in our genes Aug 16, 2020
00:00
20:57
Rare Disease Day
On this episode I talked about Rare Disease Day that was held on February 28th 2021.
Mar 04, 202127:43
Newborn Screaming in ALabama
On this episode, I talk about what is new born screening and our efforts to implement it in the state of Alabama.
Jan 26, 202115:36
Self care and caregivers.
On this episode I talked about the importance of self care as a caregiver and my journey, as well as tips of what has worked for me.
Jan 03, 202126:27
Illnesses and underlying conditions
On this episodes I talk about our experience with illnesses and how they affect people with underlying conditions.
Sep 03, 202018:49
Care and support for diagnosis
On this episode I talk about care and support, and what we do in a day to day basis.
Aug 23, 202036:08
Treatment Options
This episode is a celebration for the approval of a new treatment for SMA. I will be talking about the different treatment options and our experience with them!
Aug 16, 202020:57
Introducing my Story
This is a brief introduction to our experience and the first time we heard about it, as well as our diagnosis process.
Aug 06, 202008:59
August 3, 2020
Aug 03, 202000:56