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Parkinson’s and Me

Parkinson’s and Me

By Daniel
Those diagnosed with Parkinson's Disease experience crushing anxiety and overwhelming depression. This does not include the unrelenting progression that affects the way we move and think. There isn't a cure and individuals are forced to wait as the progression takes over. Hope can be difficult to find. This Parkinson's podcast follows a man who was diagnosed with P.D. in his early forties. Listen as Daniel reinvents his life while celebrating the victories and learns from the defeats. This podcast "strikes a healthy balance between the path of idealistic optimism and frightening pessimism".
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Currently playing episode

2.4 A Step Back

Parkinson’s and Me

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2.5 Trying to Communicate
As Parkinson's progresses, it complicates our ability to maintain relationships with others. This arrives in the form of facial masking and voice impairments. Facial masking affects the muscles of the face, mouth, and throat that causes problems with speech and swallowing. Signs of voice impairment include others commenting that you are speaking slowly or that they cannot hear or understand you clearly. This leads to people with Parkinson's withdrawing from others which can make things worse These problems tend to increase as the disease progresses but may occur at any stage. Join Daniel as he speaks about the importance of catching these symptoms early so that we can extend the quality of facial expressivity and communicating with our voice. It's important to "flip the script" by actively pushing your voice by training or therapy. Also, learn how the muscles of our face can be manipulated to delay the masking that is common in Parkinson's. Add your experience and suggestions to the conversation in this Parkinson's podcast. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com or visit our site parkinsonsand.me
18:35
June 3, 2021
2.4 A Step Back
Often, the best source of information for those who have been newly or yet to be diagnosed comes from those who have lived it. In this episode, Bryan journeys back with Daniel a few years before he was diagnosed. Daniel had just turned forty. He was ready for the second part of his life. Listen as Bryan and Daniel discuss how life was like as a relatively young man before this disease interrupted a life Don't worry! This is not another story that is full of depressive tones. This isn't an episode of longing for the past but presented in a more informative format. Hopefully, this episode will help others to better understand ways to navigate the early years. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com or visit our site parkinsonsand.me
22:35
May 6, 2021
2.3 Sit a Spell
When a person is anxious or under stress, all the symptoms of PD, including slowness, stiffness, and balance problems, can worsen. Symptoms can become less responsive to medication. There are strategies to decrease the causation of stress in life. What do those types of decisions look like? How can someone diagnosed with Parkinson's earlier in life maximize the consequences in a manner that adds meaning to your life story?. Daniel covers the above topics and displays his vulnerability. What can you do when Parkinson's appears to have ripped away from the ability to choose a future? Also, if you have Parkinson's, do you feel that in some way you are being punished for a sin you have committed? As a consequence, do you feel you have had "Parkinson's" stamped on your head? Because of your condition that you have been forced to the back of the line. If so, this episode is for you. Daniel invites you to "sit a spell". Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com or visit our site parkinsonsand.me
18:02
April 11, 2021
2.2 The Unbeatable Opponent
Bryan returns in this episode after recovering from Covid-19. In this episode, the brothers cover tips about how to rebound after an appointment with a Movement Disorder Specialist that did not live up to what we had hoped for. Also, the guys use the analogy of a boxer being thrown into a ring against an opponent that is not undefeatable. Why do we continue to take a beating while standing toe-to-toe against Parkinson's? We can't beat Parkinson's for now! If we perceive that we will only be victorious when Parkinson's is defeated then we will lose the match. What if we are able to devise a strategy that allows us to still win without our opponent being beaten? Finally, Daniel updates us on how his misperceptions nearly cost his relationships with his best friends. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com or visit our site parkinsonsand.me
23:09
March 13, 2021
2.1 Picking Your Poison
Parkinson's is known as a movement disorder. If we look deeper into how Parkinson's manifests itself, there are two different types of movement disorders. There are Bradykinesia and Dyskinesia. Bradykinesia appears as a reduction in automatic movements. Examples include slowness of blinking, swinging of the arms while walking, or just slowness of actions. Bradykinesia is a cardinal symptom in the diagnosis of PD. A person must have bradykinesia along with a tremor or rigidity. Dyskinesia involves people having uncontrolled, erratic, and writing movements. These can be slow and fluid or rapid and jerking. Dyskinesia is a complication of some Parkinson's medication and not a symptom of the disease itself. It occurs with long-term levodopa use to treat Parkinson's. Treatment for Parkinson's requires taking enough Levedopa to control your symptoms. By taking the medication it eventually will result in the onset of dyskinesia. Each time a PWP takes their medication, we must make a choice. Do we continue to poison our body to treat one movement disorder for another? Season 2 Episode 1 is packed full of honest conversation that strives to make the best of this situation. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com or visit our site parkinsonsand.me
18:12
February 18, 2021
1.16 Who I Am Becoming
In this episode, Daniel explores the challenges that come when you dislike who you are becoming when facing the progression of Parkinson's. There are many things we can do to prepare for these changes. Especially, when you are able to prepare for what is ahead. What happens when the condition attacks when you are the least ready? This presents itself in many forms, Examples are lashing out against those you love or an embarrassing moment in front of a group.  Daniel relays recent examples of when this happened to him and the self-loathing that soon took over. How much of these moments are truly ourselves? Are they the result of the progression that is expected with Parkinson's? Finally, Daniel shares discoveries that have benefited him to start the new year.  Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656.
13:55
January 11, 2021
1.15 Moving Forward
As we close out Season 1, it is important to look back at where we have been so we can look and keep moving forward. In previous episodes, many questions have been asked and Daniel has revealed new perspectives he has gained. In this episode, Daniel and Bryan update listeners on recent medication changes, ways to reinvent yourself, and goals to move toward.  Parkinson's can be an enemy that makes unreasonable demands on our lives. It's understandable to be crushed under this unrelenting force that demands continual change. How can we not be victims of this? We must acknowledge that we are not alone. Parkinson's is currently the fastest growing neurological disease in the world. As a result, millions of people are living with Parkinson's but also, and encouragingly, fighting to end it. Though there is not a cure for P.D., it remains important to unite our voices. The newly formed PD Avengers is working toward the goal of ending Parkinson's. Please join us! Become a PD Avenger at pdavengers.com.  Finally, Season 2 of Parkinson's and Me will focus on how to manage depression and anxiety. We will look deeper into how Parkinson's affects a person's mental health and how we can navigate through this complicated disease.  Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com or visit our site parkinsonsand.me If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
22:03
November 12, 2020
1.14 Friendships That Change
We lose friendships as we grow older and life becomes more complicated. What about the friendships you still have? How are these relationships affected when others learn you have Parkinson's disease? Some may not have been able to handle the news while others may have dug deeper and helped you face the challenge. In order to pursue this topic, Daniel takes you into his world. Discover his transformative experience that is full of grief, self-assessment, and hope. The experience exposes the sadness of losing friendships that have served as an anchor in Daniel's life for decades. What is the lesson that can be learned? No matter how our loved ones choose to react, we need to communicate with them because they don't understand the disease. Also, in this episode, Daniel and Bryan discuss how Parkinson's patients are overwhelmed when they realize there are limitations to what they are able to do. It begins to define them. They no longer see the possibilities of what can still be done. Stop merely surviving and realize that you have the gift of life ahead. As always we still have a say in how Parkinson's defines us. Add your experience and suggestions to the conversation. If you would like to leave us a voice message and you live in the U.S. call 1-706-873-1656. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
22:10
October 22, 2020
1.13 A Man With Parkinson's
Episode 13 explores how Parkinson’s can strip away the image of being a strong male. As men, we want to provide for our families, protect the ones we love, and be recognized for our independence. Parkinson’s chips away at this image by attacking us physically, emotionally, and mentally. Despite being recently diagnosed, Daniel is already struggling with not being a provider or a strong father figure for his son. Bryan and Daniel attempt to discover a way to redefine what it means to be a strong male when your body stops working as it should. You are not alone in having a difficult time transitioning from a pre to post-Parkinson’s man. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656.   Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
18:60
October 8, 2020
1.12 Parkinson's and Faith
With Parkinson's, you experience crushing anxiety and overwhelming depression. This does not include the unrelenting progression of the disease that seems to rip your ability to move properly a piece at a time. The effects of Parkinson's makes it so difficult to accurately describe what it is to experience the degradation to those who want to help the most. How can you move forward with life when the one you have is being taken so unceremoniously? Daniel and Bryan dive into the importance of faith. The faith in a God that actively pursues a relationship with his children has imprinted Daniel's life before and after the diagnosis of Parkinson's. Faith is defined as complete trust or confidence in someone or something. Listen as Daniel and Bryan workout the enormous complication Parkinson's adds to life and one who has faith. Special thanks goes to TobyMac. If you would like to leave us a voice message and you live in the U.S. call 1-706-873-1656. Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
21:34
September 23, 2020
1.11 The Other Side
Most of the time, we hear about how Parkinson's affects the person diagnosed. In this special episode, Daniel and his wife discuss how Parkinson's has impacted her life. This is a very vulnerable and honest account from a person who is on the other side of Parkinson's. It is a fight on two fronts. She is forced to watch as her husband slowly degenerate. At the same time, she must deal with how the diagnosis of Parkinson's will alter her future. "The Other Side" will speak to those who are directly impacted by Parkinson's but who do not have the disease. Add your experience and suggestions to the conversation. If you would like to leave us a voice message and you live in the U.S. call 1-706-873-1656. Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
23:23
September 9, 2020
1.10 Parkinson's and Perseverance
Dealing with Parkinson's is difficult for both the individual and those who are forced to experience it. Having or creating a support group is essential if someone is going to experience true success in battling PD. In this episode, we have a special guest, Ian Rodriguez, who received his diagnosis of Parkinson's Disease when he was only 25 years old. 18 years later he refuses to allow Parkinson's to define him. He is the recipient of the Rising Star Award from the Parkinson's Foundation for 2020. Ian opens up about the trials and successes that he has experienced in his life. It's an incredibly inspiring testimony that you don't want to miss. Ian covers influential organizations such as Neuroboxing and Rocky Steady Boxing that have played an important role in his battle against this progressive disease. Join Daniel, Bryan, and special guest Ian for this episode of Parkinson's and Perseverance. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656.   Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
26:57
August 27, 2020
1.9 Hoping and Coping
We all have different ways of coping with the progression of Parkinson's Disease. Some people seek out ways to defy the stereotypes associated with P.D. Others may not be able to handle this new life. They break under the crushing weight that is Parkinson's. How do you cope? The hope for a cure is a powerful motivator to keep moving. Daniel shares an encouraging new study published in Nature. There may be a potentially powerful and clinically possible approach to treating neurodegeneration by replacing lost neurons. Join Daniel, Bryan, and their special guest. Don't miss this episode. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656.   Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
24:00
August 17, 2020
1.8 Reinvent Yourself
In the wake of Covid-19, we are living in a "new normal." The resurgence of the pandemic has demonstrated our difficulty with changing our lifestyle and behavior. Living with Parkinson's forces us to adapt to another "new normal." Short of a miracle cure, there is not a way back to a life without Parkinson's. Daniel admits he is a foreigner in a foreign land without a way to escape. The good news is we do not have to do it alone. In order to move forward, and continue to accomplish the goals we strive for it is necessary to reinvent parts of our lives. To adapt to the progression of the disease, Daniel shares some of the strategies he is still learning to overcome his apathy and depression. Parkinson's has provided him clarity of purpose. Join Daniel and Bryan for an episode that explores the mindset of reinventing yourself. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
22:17
August 7, 2020
1.7 An Interlude
Daniel goes it alone in this in-between episode. There a few things we can do to combat the effects of Parkinson's. However, physicians and researchers seem to universally agree that exercise is the most effective. In fact, The Parkinson’s Outcomes Project showed that people with PD who started exercising earlier and a minimum of 2.5 hours a week, experienced a slower decline in quality of life compared to those who started later. Establishing early exercise habits is essential to overall disease management. For Daniel, the mechanism that helped inspire the motivation for him to wake up early in the morning to walk was the Apple Watch. Daniel explains how completing three simple circles on the watch moved him from being ambiguous to actively engaged. Add your experience and suggestions to the conversation. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
07:48
August 4, 2020
1.6 Parkinson's and Marriage
It was a relationship that looked like it came straight out of a Hollywood romance movie. The boy gets the girl and then marries the girl of his dreams. Their love was full of bumps along the road just like any marriage. The couple's dedication to growing old with one another was tested when the boy was diagnosed with Parkinson's disease. The diagnosis and progression of Parkinson's have been a monumental event for Daniel but also for his spouse. How do deal with such a cataclysmic event and both of you have to pick up the pieces of your shattered dreams? Join Daniel as he shares his intimate story. Also, he shares the hope that he has for the future as he and his wife face the future with Parkinson's in different ways. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
20:19
July 27, 2020
1.5 Ain't Nobody Got Time For That
When you learn that you have Parkinson's, it changes everything. The diagnosis of Parkinson's removes the illusion that you have the same quality of time left compared to your peers. This is a gift and a curse. However, this understanding can provide you with the strength and clarity of purpose. Join Daniel and Bryan for this episode that asks the question. Are you ready to get busy living or dying? The guys cover the complications that Parkinson's can cause when choosing to get busy living. The recent coronavirus pandemic makes remaining social and staying active that much harder. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
19:38
July 17, 2020
1.4 Parkinson's and a Career
The current economic volatility is a source of great anxiety for everyone. Add a new diagnosis of Parkinson's and you have the formulation of a crisis. What can those with Parkinson's whether employed or not employed expect with a disease that is progressive in nature? Daniel gets even more personal by admitting some of his greatest fears. Daniel and Bryan explore these anxieties along with other concerns. Also, this episode tackles what a person can do if they are unemployed and have Parkinson's. "Parkinson's and a Career" attempt to find a balance between the honesty of your condition versus enabling yourself to keep moving forward. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
18:06
July 14, 2020
1.3 Telling People You Know
Telling someone that you have Parkinson's is a very personal choice. It may be years later before you make the decision to tell others about Parkinson's disease. It makes you vulnerable. How do you tell your spouse, kids, parents, etc? Daniel walks listeners through his experience so that it can possibly help you. His son was 10 years old when he decided that his son needed to know. He was afraid that if he didn't tell him then what would be the consequences if his son heard it from others. Also, Daniel explores his own fear of telling others while deciding if his career would be limited if too many people know. It's very complicated. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
25:40
July 4, 2020
1.2 Why Grieve?
Daniel discusses the importance of participating in the grieving process. Moving through the steps of this process has played a significant role in how he has dealt with the diagnosis of Parkinson’s. We know there is a process of grief when we lose a loved one. The diagnosis of Parkinson’s disease is the end of life as a person knows it. The direction of our lives is ground to a complete stop. The need to grieve the loss of that life is valuable! We don’t heal all at once but over time the emotions ease. We need to move forward and redefine what life is with the disease. Eventually, the hope is to free up the energy and not continue to live in the past. To keep walking ahead emotionally instead of giving up. Also, Bryan joins Daniel to help guide the conversation of the podcast. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656.   Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
28:14
June 24, 2020
1.1 Tribulation Road
Welcome to the podcast. Allow me to introduce myself. I'm an ordinary person that you bump into on the street. Possibly I am the person that you work with and is trying to hide their symptoms. That person is me. 9 months ago I was diagnosed with "Young Onset Parkinson's". Now I am struggling to prepare for the rough road ahead. However, I must hold onto hope that I have a wonderful life ahead. Join me for this inaugural episode of Parkinson's and Me. Add your experience and suggestions to the conversation. If you would like to leave Daniel a voice message and you live in the U.S. call 1-706-873-1656. Email us parkinsonsandmepodcast@gmail.com. If you have the Anchor app please leave a message at https://anchor.fm/parkinsonsandme.
11:37
June 14, 2020