Pregnancy, Alcohol and FASD: The Surprising Reality
By NOFASD Australia
Pregnancy, Alcohol and FASD: The Surprising RealityDec 02, 2021
#34 FASD in an Early Childhood Setting with Christine and Sophie
Kurt is joined by Christine Brooks; an experienced teacher, NOFASD board member and carer of a child with FASD, and also Sophie; a biological mother of a child with FASD. Together they chat about FASD in the early childhood sector, the things to know about FASD in an early childhood setting, and the special resources that have been developed to help these educators develop an awareness and understanding of FASD.
For more information on the resources developed by Early Childhood Australia (ECA) in partnership with NOFASD Australia or to download your free copy of the resources, see: https://www.nofasd.org.au/service-providers/education/through-different-eyes/
For more information about FASD, please go to: https://www.nofasd.org.au/
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewees: Christine Brooks and Sophie
Narrator: Frances Price
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia. The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#33 ‘Risk does not equal destiny’ Social Worker Panel Interview with Prue Walker and Dr Kerryn Bagley
Kurt is joined by Prue Walker and Dr Kerryn Bagley in a panel interview about social workers and FASD. Together they discuss how they first learned about FASD, the role social workers play in assisting people with FASD and their families. They also examine outcomes, risk surrounding FASD and how social workers can become better informed in relation to this ‘invisible’ disability.
Learn more about International FASD Awareness Day: www.nofasd.org.au
References:
Latrobe University’s “Living with Disability” YouTube site: https://www.youtube.com/channel/UCAf1u7TdOktOCLdGBtMxWTg
Dr Robyn Williams: https://www.linkedin.com/in/robyn-williams-0ab76596/?originalSubdomain=au
Prue Walker: https://pruewalkerfasd.com/ – workshops, training and FASD consultation services..
Dr Vanessa Spiller: FASD training and resources https://www.jumpstartpsychology.com/Explained-by-Brain-Group.html and other videos (search vanessa spiller fasd)
Dr Sara McLean: FASD resources for Emerging Minds https://emergingminds.com.au/resources/what-is-fetal-alcohol-spectrum-disorder-fasd/ and has many webinars online (search sara mclean fasd)
Key readings for social workers who want to learn more about FASD click the following link: https://www.nofasd.org.au/33-risk-does-not-equal-destiny-social-worker-panel-interview-with-prue-walker-and-dr-kerryn-bagley/
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewees: Prue Walker and Dr Kerryn Bagley
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#32 Dispelling the Stigma with Angelene Bruce
Kurt is joined by Angelene Bruce; a biological mother of a child with FASD, a FASD advocate, speaker and parent mentor.
Together they chat about Ange’s FASD journey, her appearance on the Channel Ten TV show, The Project and caring for a child with FASD.
For more information about FASD, please go to: https://www.nofasd.org.au/
The Project – “Hidden Epidemic Of Fetal Alcohol Syndrome”: https://www.youtube.com/watch?v=rd1yOhImDKA
Angelene’s Twitter Page:
https://twitter.com/AngeleneBruce
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewee: Angelene Bruce
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#31 FASD Male Caregivers Panel Interview
Kurt is joined by David, Nick and Mav each of whom is a male who cares for a child with FASD. While each of them has come into their child’s life in a different way, they find similarities in their experiences. Together they discuss what it is like to care for a child with FASD, including the challenges they face and how they help their children develop their own individual strengths. They also share the tools and resources that have helped them through difficult situations they face with their child who has this hidden disability.
For more information about FASD, please go to: https://www.nofasd.org.au/
To check out Mav’s book ‘Making parenting enjoyable: Through healing, purpose and meaning’ ; please go to: https://www.amazon.com.au/Making-parenting-enjoyable-Through-healing/dp/B0BVT722M9/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=1685325469&sr=8-1
To express your interest in joining one of the online support groups offered in NOFASD Australia’s Families Linking with Families program please register your details at: https://www.nofasd.org.au/contact-us/ (Please note that these support groups are only open to residents of Australia.)
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewees: David, Nick and Mav
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#30 Australian FASD Indigenous Framework with Nicole Hewlett
Kurt is joined by Nicole Hewlett, a proud Palawa woman and researcher with the University of Queensland. Nicole is currently undertaking a PhD focusing on the development and implementation of Australia’s first FASD Indigenous Framework. They talk about this framework; improving medical care for people with FASD; the importance of a strengths-based approach in terms of FASD and creating equal partnerships between medical professionals and people with FASD.
For more information about FASD, please go to: https://www.nofasd.org.au/
To read more about Nicole's research then go to this link: https://pubmed.ncbi.nlm.nih.gov/36982125/
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewee: Nicole Hewlett
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
Pregnancy, Alcohol and FASD: The Surprising Reality Series 05 Trailer
We are back with a new series and a new name for our little Podcast. The first episode of Series 05 of Pregnancy. Alcohol and FASD: The Surprising Reality will be released this coming Friday the 2nd of June 2023.
#29 Kia Ora with Professor Anita Gibbs
Kurt is joined by Professor Anita Gibbs; a Professor at the University of Otago, a registered social worker and a regular facilitator of a parent/caregiver support groups for families with children with FASD. They talk about Anita’s experience with FASD which is two-fold and covers both her teaching and research as an academic, and also her lived experience as a parent caring for two boys with FASD. They also chat about FASD in the criminal justice system and ways we may be able to stop people with this invisible disability from becoming entangled in this system.
For more information about FASD, please go to: https://www.nofasd.org.au/
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewee: Anita Gibbs
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#28 FASD Families with Dr Natalie Phillips
Kurt is joined by Dr Natalie Phillips, who has a Doctor of Clinical Psychology and PhD (Neuropsychology) from the University of Sydney. They discuss her research and presentation that won the People’s Choice Award in the “Three-minute Thesis” session at NOFASD’s conference, “The FASD Forum ’22”. Natalie’s submission for the “Three-minute Thesis” was titled: Caring for children with FASD: importance of understanding the whole family’s needs. They discuss ways that we can best help families which have children with FASD.
For more information about FASD, please go to:
Caring for children with FASD: importance of understanding the whole family’s needs:
https://adc.bmj.com/content/107/8/755
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewee: Dr Natalie Phillips
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#27 Past, Present and Future with Dr Kenneth Lyons Jones & Dr Christina Chambers
In this very special September International Awareness Day episode, Kurt is joined by Dr Kenneth Lyons Jones and Dr Christina Chambers. Dr Jones chats about his identification of Fetal Alcohol Spectrum Disorder, or FAS as it was first termed back in 1970. Dr Chambers chats about recent medical discoveries that are likely to make the process of FASD diagnosis significantly easier. They both talk about attitudes towards FASD and knowledge about this disability in the community as a whole – and also the need to improve the standard of medical knowledge when it comes to both FASD prevention and supporting people with this invisible disability.
For more information about FASD, please go to:
Prenatal alcohol exposure can be determined from baby teeth: Proof of concept
https://onlinelibrary.wiley.com/doi/abs/10.1002/bdr2.2054
Early Predictors of FASD in Ukraine
Early Predictors of FASD in Ukraine - Christina Chambers (grantome.com)
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Narrator: Frances Price
Interviewer: Kurt Lewis
Interviewee: Dr Kenneth Lyons Jones and Dr Christina Chambers
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#26 Jigsaw with Jennifer Catlin
In the first episode of NOFASD’s podcast series for 2022, Kurt is joined by Jennifer Catlin; a woman who has only recently been diagnosed with FASD. They talk about her life being a jigsaw puzzle, how this invisible disability has affected her life and how her life has been improved through her diagnosis.
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewee: Jennifer Catlin
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#25 The FASD Podcasters
In this last episode of the year, Kurt is joined by FASD Podcasters from around the globe. Natalie Vecchione from FASD Hope, Jeff Noble from the FASD Success Show, Clare Devanney-Glynn and Jessica Rutherford from Spotlight on FASD and Robbie Seale from FASD Family Life.
They chat about their podcasting journey, the positive developments in FASD research and programs going on in each of their countries. They also share knowledge and research aimed to help people with FASD and their parents/carers.
For more information about FASD, please go to:
To learn more about Natalie Vecchione and FASD Hope:
To learn more about Jeff Noble and the FASD Success Show: https://www.fasdsuccess.com/
To learn more about Robbie Seale and FASD Family Life:
https://www.buzzsprout.com/1736766
To learn more about Clare Devanney-Glynn, Jessica Rutherford and Spotlight on FASD: https://anchor.fm/clare-devanney-glynn
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewees: Natalie Vecchione, Jeff Noble, Robbie Seale, Clare Devanney-Glynn and Jessica Rutherford.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#24 Prevalence with Dr Melissa Cheung
Kurt is joined Dr Melissa Cheung, Research Fellow at the University of Sydney and Manager of the Fetal Alcohol Spectrum Disorder Australian Registry (FASDAR).
They chat about FASDAR, the benefits to children with FASD who are registered with this service and the need for more research into the prevalence of FASD in Australia.
For more information about FASDAR please check out this website:
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewee: Dr Melissa Cheung
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#23 The FASD Brain with Gilberto Spencer
Kurt is joined by Gilberto Spencer, FASD Advocate, Brain Coach, Mentor and Podcaster. They chat about his FASD symptoms, the events leading up to his diagnosis and the release of his podcast series; “The FASD Brain”. Gilberto is the first person with FASD to host and produce his own podcast series.
To listen to Gilberto’s podcast series please click on the link below:
https://www.thefasdbrain.com/podcast
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewee: Gilberto Spencer
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#22 Helpline with Robyn Smith
Kurt is joined by Robyn Smith the National Helpline Manager for NOFASD Australia. They chat about her work with the NOFASD Helpline service which is dedicated to reducing the harm caused by alcohol-exposed pregnancies and improving lives for those living with FASD. They discuss who can use this service and what kinds of information and help that our helpline operators can provide.
NOFASD Australia Helpline: 1800 860 613
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewee: Robyn Smith
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#21 Prenatal Exposure with Briana Lees
Kurt is joined by Briana Lees, a researcher, PHD candidate for the University of Sydney and NHMRC Scholar studying the effects of alcohol use on neurodevelopment, emotion and behavior.
They talk about her research into prenatal alcohol exposure, alcohols effects on unborn children, the need for more research into comorbidity between FASD and other disabilities like ADHD.
For more information about Briana Lees research please check out her interview with Dr Norman Swan: https://www.abc.net.au/radionational/programs/healthreport/alcohol-use-in-pregnancy-and-harm/13432380
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewees: Briana Lees
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#20 Biological Father with Robert
Kurt is joined by Robert; a biological father of a child with FASD.
They talk about the triumphs, the challenges and his feelings about his son being diagnosed with this invisible disability.
Podcast episodes featuring Sophie;
- #05 Finale with Karen
https://anchor.fm/pasurprisingreality/episodes/05-Finale-with-Karen-e6b1lg/a-aqiidg
- #11 Karen with Sophie
https://anchor.fm/pasurprisingreality/episodes/11-Karen-with-Sophie-el4t8a/a-a3iam47
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewees: Robert
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#19 Strengths with Kelly Skorka
Kurt is joined by Kelly Skorka; an Occupational Therapist, Researcher and PhD candidate at the University of Queensland with a focus in researching strengths and support for children with Fetal Alcohol Spectrum Disorder.
They chat about using a strengths-based approach to help children with FASD and the critical review she authored last year that focused on the experiences of children with FASD and their families. They also discuss the value of health professionals taking a holistic approach when supporting children with this invisible disability and their families.
To learn more about Kelly Skorka’s research then watch the video from the link below.
https://www.youtube.com/watch?v=0Qyr39FdosU
For more information about ‘Experiences of children with fetal alcohol spectrum disorder and their families: a critical review’ mentioned in this podcast interview click the link below.
https://espace.library.uq.edu.au/view/UQ:d106484
For more information about FASD, please go to:
https://www.nofasd.org.au/
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewees: Kelly Skorka
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#18 A Little Bit of Success with Neil Reynolds
Kurt is joined by Neil Reynolds, a Carer of two children with FASD.
They chat about raising children with FASD, including the challenges and the importance of staying positive. He reminds us that small steps lead to a larger journey and to cherish every little bit of success.
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewees: Neil Reynolds
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#17 Early Childhood Education with Dr Kate Highfield and Christine Brooks
Kurt is joined by Dr Kate Highfield; the General Manager of Professional Learning and Research Translation for ECA (Early Childhood Australia), an experienced teacher, author and researcher. He is also joined by Christine Brooks; another experienced teacher, NOFASD board member and carer of a child with FASD. Together they chat about FASD in the Early Childhood sector, the role of early childhood educators and a new resource that is being developed to help these educators understand FASD.
For more information on the guide being developed by ECA in partnership with NOFASD Australia, please check out the website below.
https://www.earlychildhoodaustralia.org.au/through-different-eyes/
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewees: Christine Brooks and Dr Kate Highfield
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#16 FASD First Voices Part 4 with CJ Lutke
In this fourth and final part of this multi-part FASD First Voices Special, Kurt's quest is at a end.
Kurt is joined by CJ Lutke, a person with FASD, a member of the FASD Changemakers, advocate, writer and blogger. They chat about her life, her writing and how she deals with her FASD symptoms.
To read CJ Lutke’s many insightful blogs about her FASD then please click on this link:
https://www.nofasd.org.au/community/cj-lutke-blog/
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewee: CJ Lutke
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#15 FASD First Voices Part 3 with Maggie May
Kurt’s quest continues as he interviews another person with FASD in the third part of this multi-part FASD First Voices Special. In this episode, Kurt is joined by Maggie May who is a person with FASD, advocate, speaker, YouTuber and moderator for the Facebook support group for adults with FASD called “Flying with Broken Wings”.
They chat about her life and how she lives with this invisible disability. She also has advice for other people who have FASD.
To check out Maggie’s YouTube page click this link: https://www.youtube.com/channel/UCcJmMT33IPmwUIroo5UT_rw/videos
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewee: Maggie May
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#14 FASD First Voices Part 2 with Jessica
Kurt continues his quest to find out more about the people who live with FASD. In second part of this multi-part special, Kurt is joined by Jessica; an advocate, writer, speaker and person with FASD, who was previously interviewed back in Series 2.
They chat about her life, her FASD symptoms as well as the tips and advice she has for other people with FASD who are living with this invisible disability.
Please check out Jessica’s twitter page through this link:
https://twitter.com/JB_TalksFASD
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewee: Jessica
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#13 FASD First Voices Part 1 with RJ Formanek
Kurt is on a quest to discover more about people who live with FASD. In each week of this multi-part special, Kurt will talk with an adult who lives with this invisible disability to learn more about how they live with FASD. In part one, Kurt is joined by RJ Formanek, founder of the Red Shoes Rock movement and a very successful Facebook support group for adults with FASD called “Flying with Broken Wings”.
They chat about Red Shoes Rock, how FASD impacted his life and the strategies he uses that help him manage this disorder.
To check out RJ Formanek’s Facebook support group for adults with FASD, please use this link: https://www.facebook.com/groups/FASDaFlyingwithbrokenWings/
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewee: RJ Formanek
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
#12 Advocacy with Dr Jeff McMullen
Kurt is joined by Dr Jeff McMullen, renowned Australian journalist, author, filmmaker and NOFASD Ambassador.
In this supersized FASD Awareness Day episode, they chat about his work as a journalist, as an advocate for people with FASD and the power of grass roots activism. They also talk about the importance of being an advocate for people with FASD and raising awareness about this invisible disability.
For more information about Dr Jeff McMullen, please visit this website:
https://www.nofasd.org.au/about-us/australian-ambassadors/jeff-mcmullen/
If you would like to check out Dr Jeff McMullen’s homepage then please visit this website:
https://www.jeffmcmullen.com.au/
For more information about FASD, please go to:
Producers: Kurt Lewis, Louise Gray and Julie Flanagan
Interviewer: Kurt Lewis
Interviewee: Dr Jeff McMullen
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
The views expressed in this podcast are those of the interviewee. NOFASD makes every effort to ensure all content is free from judgement and stigma. NOFASD’s mission includes reducing stigma for families and individuals impacted by FASD.
Pregnancy and Alcohol: The Surprising Reality Series 03 Trailer
"It has been 10 months and 11 days since the last episode of Pregnancy and Alcohol: The Surprising Reality. Until now...."
The first episode is a interview with NOFASD ambassdor and Journalist Dr Jeff McMullen will be released on the 9th of September 2021 (International FASD Day)!
We are back with heaps of amazing interviews with FASD experts, parents/carers of children with FASD and even people who have been diagnosed with this invisible disability.
Thank you for taking the time out to listen to our trailer!
Please show your support by liking and subscribing to our podcast!!
If you want more information about FASD then please go to https://www.nofasd.org.au/
Presenter: Kurt Lewis
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#11 Karen with Sophie
Kurt is joined by Sophie......
They chat about the mysterious Karen from #05 Finale. All will be revealed in this episode.
For more information about FASD, please go to:
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewee: Sophie
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#10 Founder with Sue Miers
Kurt is joined by Sue Miers, the founder and past Chair of the Board of NOFASD Australia.
They chat about her experience in creating the national organisation for Fetal Alcohol Spectrum Disorder.
For more information about FASD, please go to:
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewee: Sue Miers
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#09 Lived Experience 02 with Sue
Kurt is joined by Sue, the Mother of Jessica (the FASD Advocate who was interviewed in last week's episode.)⠀
They chat about her journey to get a diagnosis for her daughter.
For more information about FASD, please go to:
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewee: Sue
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#08 Lived Experience 01 with Jessica
Kurt is joined by Jessica, a FASD Advocate.
They chat about her recent FASD diagnosis, living with the symptoms of this disorder and her plans for the future.
For more information about FASD, please go to:
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewee: Jessica
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#07 Pioneer with Dr Elizabeth Elliott
Kurt is joined by Dr. Elizabeth Elliott, a member of the Order of Australia (AM), for services to paediatrics and child health.
Dr. Elliott is regarded as a "pioneer in fetal alcohol spectrum disorder, advocacy and patient care".
They chat about diagnosis, advocacy, alcohol labeling and FASD awareness.
For more information about FASD, please go to:
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewee: Dr. Elizabeth Elliott
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#06B Parents and Carers Special Part 02
In Part 02 of the Parents and Carers Special, Kurt chats with more people who care for children wih FASD. They talk about FASD, children and the tough times.
For more information about FASD, please go to:
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewee 01: Nikki Mortier
Interviewee 02: April Wilson
Show Notes
- Perseveration Presentation: https://www.academia.edu/15457261/Perseveration_The_Lens_by_Which_Those_Afflicted_with_FASD_Interpret_their_Relationship_and_Environment
- Who has to change? Trying their hardest, doing their best! What it is like to live with Fetal Alcohol Spectrum Disorder
https://static.fasdoutreach.ca/www/downloads/whochange.pdf
- Eileen Divine "Managing the Toll of Caregiver Trauma"
https://www.eileendevine.com/single-post/2019/01/05/Managing-the-Toll-of-Caregiver-Trauma
Living on Edge
https://images.app.goo.gl/me46f4FuWR9yqgkV7
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#06A Parents and Carers Special Part 01
Welcome to Series 02!!
Kurt is joined this week by three people who care for children with FASD. They discuss FASD, children and providing support for those people who need it the most.
Please tune in next week for Part 02 of the Parents and Carers Special
For more information about FASD, please go to:
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewee 01: Christine Brooks
Interviewee 02: Sam Pinnell
Interviewee 03: Kath Thomas
This project is funded by the National Disability Insurance Scheme (NDIS) in collaboration with NOFASD Australia.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
Pregnancy and Alcohol: The Surprising Reality Series 02 Trailer
We Are Back!!
A sneak peek at the second series of Pregnancy and Alcohol: The Surprising Reality....
The first episode will be released on the 9th of September 2020 (International FASD Day)!
Thank you for taking the time to listen to our trailer!
Please show your support by liking and subscribing to our little podcast!!
If you want more information about FASD then please go to https://www.nofasd.org.au/
Presenter: Kurt Lewis
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#05 Finale with Karen
Kurt is joined by Karen. A Mother who knows that her son has FASD but is waiting for the official diagnosis. Due to Karen not wanting to be identified, this is a word for word recreation of the orignal interview with a actress and myself.
For more information about FASD, please go to:
The NOFASD Helpline: 1800 860 613
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewee: Karen
Actress: Tanya
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#04 General Practice with Dr Jon Harper
Kurt is joined by Dr Jon Harper (GP Liaison Officer for the Sunshine Coast Area) to get a GP's perspective on alcohol, pregnancy and FASD.
For more information about FASD, please go to:
HealthPathways
https://www.ourphn.org.au/healthpathways/
Queensland Health Support Services
https://www.health.qld.gov.au/public-health/topics/atod/services
FASD Hub
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewees: Dr Jon Harper
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#03 The Journey with Judy Shea
Kurt is joined by Judy Shea to discuss her grandson and there incredible FASD journey. Dr Heidi Webster sits in on our chat to help us understand the medical information.
For more information about FASD, please go to:
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewees: Judy Shea and Dr Heidi Webster.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#02 Diagnosis with Dr Heidi Webster and the Staff of the FASD Clinic
Kurt is joined by Dr Heidi Webster (Paediatrician), Denise Kane (Senior Psychologist), Nicole Lord (Speech Therapist and Clinic Manager), Nicole Wood (Social Worker), Cate Hilly (Occupational Therapist) and Jessica Doak (Psychologist) for a unique panel interview. These health professionals work for the Sunshine Coast Child Development Service (CDS). The CDS is a service that provides a coordinated model of care for children with complex developmental conditions such as FASD. We discuss the diagnosis process for FASD and it's benefits.
The FASD Clinic would like to acknowledge Griffith University Psychology department, Principal Researcher Professor Sharon Dawe and the Australian Federal Government Department of Health - Alcohol Branch research grant for there funding and support.
For more information about FASD, please go to
FASD Clinic
https://www.fasdhub.org.au/services/clinics/sunshine-coast-cds/
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewees: Dr Heidi Webster, Denise Kane, Nicole Lord, Nicole Wood, Cate Hilly and Jessica Doak.
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
#01 Myths with Louise Gray from NOFASD Australia
First episode of Pregnancy and Alcohol: The Surprising Reality!!!
Kurt is joined by Louise Gray (The Chief Executive Officer for NOFASD Australia) to chat about Fetal Alcohol Sprectrum Disorder, NOFASD Australia and the myths of FASD.
For more information please go to https://www.nofasd.org.au/
Language guide - https://www.nofasd.org.au/wp-content/uploads/2019/04/FASD-HUB-Australia-Language-Guide.pdf
Producer: Kurt Lewis
Interviewer: Kurt Lewis
Interviewee: Louise Gray
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.
Pregnancy and Alcohol: The Surprising Reality - Series Trailer
A sneak peek at the upcoming podcast series....
The first episode will be released on the 9th of September 2019 (International FASD Day)!
Thank you for taking the time out to listen to our trailer!
Please show your support by liking and subscribing our little podcast!!
If you want more information about FASD then please go to https://www.nofasd.org.au/
Podcast Creator: Kurt Lewis
Producer: Kurt Lewis
Presenter: Kurt Lewis
Clip 01 Voice: Louise Gray
Clip 02 Voice: Denise Kane
The copyright is owned by NOFASD Australia.
All rights reserved - No reproduction or use of this content without written consent of Kurt Lewis and NOFASD Australia.