The Independent Life

In this inspiring episode of The Independent Life podcast, host Tony sits down with Dug Jones, the President of the Board of Directors at the Center for Independent Living of North Central Florida (CILNCF). Dug shares his remarkable journey of resilience and purpose, starting with a life-changing spinal cord injury during high school football. This pivotal moment set the stage for an extraordinary life, including earning law degrees, playing wheelchair basketball at a national and international level, and leading initiatives in education and workforce development.

Dug reflects on his experiences both before and after the Americans with Disabilities Act (ADA), offering unique insights into the evolution of accessibility and inclusion. He also delves into the transformative power of adaptive athletics, how being a parent with a disability has shaped his life, and the professional milestones that have defined his career.

Throughout this conversation, Dug shares valuable wisdom on what drives him, the values that guide his work, and the impact he's had on the disability community. His story is a testament to the power of perseverance, the importance of community, and the strength of the human spirit.

Tune in to hear Dug’s perspective on disability, leadership, and the lessons he’s learned from both his personal and professional journey. You won’t want to miss this heartfelt and enlightening conversation.

Episode Resources:

In this compelling episode of The Independent Life, Tony sits down with Dr. Steven Noll, Ph.D, professor at the University of Florida's Department of History and advocate whose career spans decades of groundbreaking work in disability rights and education. Tony begins by recounting their first meeting at Gainesville's Sidney Lanier Center, where Dr. Noll coached basketball and championed fitness for students with disabilities. Together, they reflect on the transformative collaboration that promoted inclusion and empowerment through physical activity.

Dr. Noll shares how his early experiences growing with a family member who had Down syndrome shaped his passion for special education. This led him to a 15-year career teaching at a special education school in Florida, where he also became a pioneer in using adaptive technology to empower students with profound disabilities. From setting up computer labs to coaching basketball, Dr. Noll inspired countless students to achieve greater independence.

The conversation dives into the transformative era of the 1970s, when disability rights leaders gathered at a groundbreaking camp in upstate New York, as chronicled in the documentary Crip Camp. Dr. Noll is currently writing a book on this pivotal time and reflects on how these events ignited the disability rights movement, leading to milestones like the historic 504 protest.

Dr. Noll discusses his transition to academia, where he now teaches the history of disability, helping students understand the evolution of disability rights and policies. He emphasizes the importance of advocacy starting with individuals but gaining power through allies and collective action.

This episode is part one of a two-part conversation with Dr. Noll. Tony invites listeners to reflect on the lessons of the past to inspire the ongoing journey toward equity and inclusion. Don't miss this engaging exploration of history, advocacy, and innovation in the world of disability rights.

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In this inspiring episode, David Sussman, board president of the Telluride Adaptive Ski Program, shares his remarkable journey through disability and adaptive sports. David reflects on his path to living life with radical acceptance and independence, highlighting how focusing on what he can control has allowed him to thrive. He discusses the pivotal people and moments that have shaped his story, and how adaptive sports pushed him beyond his comfort zone, facilitating personal growth and transformation. David’s enthusiasm for life and his dedication to sharing that with others will leave you motivated to embrace new challenges and live fully.

David Sussman’s journey began in 1977 when, at twelve years old, he contracted Transverse Myelitis, a rare virus that left him paralyzed from the waist down. With the support of his parents, he focused on his future, adapting to life as a paraplegic in Irvine, California. David earned a bachelor’s degree in marketing from New Hampshire College and went on to have a successful career as a marketing executive.

In 1996, David discovered adaptive skiing during a trip to Telluride, Colorado, which reignited his sense of purpose. By 2009, he left the corporate world for a second career in hospitality and began teaching adaptive skiing with STRIDE Adaptive Sports in Albany, New York, allowing him to give back to others.

In 2015, David returned to Telluride to celebrate his 50th birthday and eventually made it his permanent home. Though forced into retirement in 2020 due to health concerns, David now dedicates himself full-time to the Telluride Adaptive Sports Program, where he serves as Board President, ski instructor, and Special Olympics coach.

Episode Resources:

Kelsey Bell, Executive Director of Southwest Independence Center in Durango, Colorado, joins us on this episode to share her powerful journey of growing up with multiple disabilities and how she embraced her disability as part of her identity. She reflects on her experiences from elementary school through college, offering practical strategies for navigating academic success at each stage.

She also delves into her early role as a Youth Transition Specialist at the center and how it shaped her leadership style. Now at the helm of the organization, Kelsey talks about the importance of engaging the post-ADA generation in the disability movement and independent living, exploring what that engagement looks like and how to foster it.

Kelsey highlights the critical role of integrating the independent living philosophy into both the services and the culture of independent living centers. She explains how this approach is essential to creating healthy, collaborative, and efficient environments for staff and the people they serve.

Episode Resources:

Tony is joined by Dr. Carol Lewis, a community health expert who recently conducted a transformative workshop for the CIL staff. The session emphasized the importance of mental health and wellbeing, particularly for those who dedicate their lives to serving others. Dr. Lewis shares practical strategies for promoting mindfulness, healthy sleep, nutrition, physical activity, and social connections—practices that are accessible to everyone, anywhere, anytime. The conversation explores the mental health spectrum, offering insights into managing situational anxiety, depression, and stress. Dr. Lewis provides clinical explanations and actionable tools to help us all enhance our mental health and support the wellbeing of others in our communities. This episode is a must-listen for anyone looking to deepen their understanding of mental health and discover practical ways to nurture it daily.

Dr. Carol Lewis is a clinical psychologist with 30 years of experience, specializing in the treatment of chronically suicidal and self-injurious individuals through skills-based and mindfulness approaches. She previously worked at UF Health Psychiatric Hospital and now serves in the UF Department of Psychiatry. With a Masters of Public Health and board certification in public health, Dr. Lewis focuses on evidence-based behavioral health treatments for underserved populations. Her research includes developing public health interventions for non-professionals, and she is a founding member of Peace4Gainesville, a trauma-responsive community initiative.

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Dr. Jessica Kramer is an Associate Professor in the Department of Occupational Therapy at the University of Florida's College of Public Health and Health Professions. Her research focuses on collaborating with youth with intellectual and developmental disabilities (I/DD) to create and evaluate rehabilitation products, developing community-based interventions to help these youth and their families address environmental barriers, and designing high-quality patient-reported outcome measures (PROMs). Dr. Kramer employs a variety of methodologies, including quantitative, qualitative, and participatory approaches, to address complex research questions and meet the needs of various stakeholders. She has received grants from organizations such as PCORI, NIH, NIDILRR, and AOTF, and collaborates with multiple universities and advocacy groups. Her practical experience includes helping children and youth with severe disabilities participate and learn in public schools.

Resources: 

Mark D. Bennett is the principal of Uniting by Design LLC, a consulting firm dedicated to helping leaders build organizations that achieve outstanding results, uphold ethical standards, and adapt to change. After leaving the practice of law, Mark pursued graduate studies in counseling psychology and family therapy. He then became a full-time mediator, handling disputes involving staff, leaders, and boards across businesses, nonprofits, government agencies, and international organizations.

Twenty-five years ago, Mark transitioned from resolving organizational issues to fostering organizational health. He now serves as a workshop presenter on leadership, teamwork, conflict resolution, values-based decision making, and creative collaboration. Additionally, he is a leadership coach, facilitating collaboration, strategic planning, and critical decision making.

Mark has authored three books:

• Uniting by Design: The Architecture of Creative Collaboration (2021) – A practical guide to fostering collaboration within organizations, leadership teams, work teams, alliances, and partnerships.
• A Field Guide to Good Decisions: Values in Action (2006) – Offers practical steps for ethical decision-making, enabling individuals to make tough choices with integrity, accountability, and credibility.
• The Art of Mediation, 2nd edition (2005) – Teaches conflict resolution and principled negotiation skills to help people bridge differences, reach agreements, and achieve peace.

Episode Resources:

In this enlightening episode of The Independent Life, Tony welcomes Jonathan Spoliansky, the insightful author of Happiness Is Key. Jonathan's breakthrough book offers a simple yet profound guide on living happily every day, emphasizing that happiness is not just a state of mind but a reflection of our actions and behavior towards others.

Together, they explore the five essential keys outlined in the book, which can unlock our happiness within and create a life filled with peace, trust, gratitude, honesty, and love. Through engaging discussion, Jonathan shares his journey and realizations, drawing from his extensive study of various philosophies and religious traditions, as well as his travels around the world. He highlights how embodying positive qualities like honesty, fairness, empathy, and generosity can create a ripple effect of positivity, benefiting those around us.

This episode is a heartfelt reminder that cultivating happiness is a daily practice that requires effort and attention. Jonathan's practical advice and inspirational insights make it clear that by incorporating these keys into our daily lives, we can make happiness a more consistent and enduring part of our experience.

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In this episode of The Independent Life Podcast, we delve into the world of assistive technologies and their profound impact on enabling independence for individuals with disabilities. Our guests, Eric Reed, Executive Director of FAAST (Florida Alliance For Assistive Services and Technologies), and Kailey Medlock, FAAST's Training & Community Development Director, join us to share their insights and experiences.

We explore the diverse range of assistive technologies available, catering to individuals of all ages and disabilities. Discover how FAAST has evolved under Eric's leadership, expanding its reach through regional distribution centers like The Center For Independent Living of North Central Florida. Learn about the innovations revolutionizing assistive technologies, including SMART homes designed to enhance accessibility and autonomy for people with disabilities.

Eric sheds light on the intersection of assistive technologies and agriculture, discussing the role of FAAST in supporting farmers with disabilities through the Florida AgrAbility Project Advisory Board. We also delve into the importance of reaching rural communities and ensuring access to repair services for existing assistive technologies.

Discover how FAAST's partnership with The Center For Independent Living has empowered hundreds more individuals each year, promoting independence and enriching lives within our community. Tune in to gain valuable insights into the ever-evolving world of assistive technologies and their profound impact on independence and quality of life.

Don't forget to subscribe to The Independent Life Podcast for more inspiring stories and resources for people with disabilities!

Episode Resources:

In this compelling episode, we are joined by Victoria Giatanis, the Acting Director for Vocational Rehabilitation for the Florida Department of Education. Victoria's journey to this esteemed position is marked by her dedication to service and her role as a public servant.

From her early days in teaching, where she championed exceptional student education, particularly for those with visual impairments, to her current role shaping policies and initiatives, Victoria's impact is profound. As a mother to Mira Gaitanis, whose success as a young adult with a disability is credited to Victoria and her husband, our conversation begins with the impact of disability on family life, especially as the daughter of a veteran with service-connected disabilities.

Throughout the episode, Victoria shares valuable advice for parents of children with disabilities, drawing from her own experiences and emphasizing the importance of advocacy and navigating the education system effectively. We explore the qualities of a good educator for students with disabilities and delve into what it takes to be successful in Victoria's position as a servant of our state, focusing on collaboration, leadership, and service.

Victoria's journey is one of humility and service, driven by a deep-rooted motivation to make a positive impact in the lives of individuals with disabilities. Join us as we uncover the driving forces behind Victoria's career choices and gain insights into her role as a leader and advocate in the disability community.

Episode Resources:

Welcome back to The Independent Life Podcast, where we dive into the stories of inspiring individuals who are making a difference in the world. In this episode, Tony engages in a powerful conversation with Jennifer Ungru, a passionate advocate driving change in healthcare accessibility and systemic transformation. She shares her dedication to ensuring hospitals and healthcare facilities have the resources to provide quality care, particularly for medically fragile children. The dialogue spans diverse subjects, including navigating leadership, overcoming imposter syndrome, and adapting to the ever-evolving legislative landscape.

In this insightful conversation, Tony and Jennifer navigate through the challenges and triumphs of healthcare, shedding light on the ongoing quest for a system that aims to serve every individual. Jennifer reveals her "why" – the driving force behind her dedication to making positive changes in the healthcare industry. The discussion extends to virtues and personal growth, exploring the qualities Jennifer values and those she continues to cultivate to be a better advocate and leader. This episode offers a profound glimpse into the complexities of creating a healthcare system that meets the diverse needs of all.

Episode Resoures:

In this enlightening conversation, our guest, Darrick McGhee, a seasoned lobbyist for the Florida Association Center for Independent Living, unveils the the diverse facets of his life. Beyond the realms of political influence, Darrick is also a Pastor and a man of unwavering faith. Together, Tony and Darrick embark on an exploration of the distinctive intersectionality of lobbying, spirituality, and personal development. Darrick's experiences in both the public and private sectors provide a fresh perspective on what this role can truly embody.

In this episode, Darrick lays bare the challenges faced by the disability community, drawing on his own experiences to create a narrative that resonates with authenticity. The conversation delves into the transformative power of education, dismantling social and cultural stigmas, and breaking free from limiting beliefs that hinder personal and collective progress. Darrick shares his formula for triumphing over adversity, inspiring all who tune in to believe in their own capacity to overcome. Tony and Darrick engage in a discourse on profound topics such as self-discovery, examining the question, "Who am I?" to unlock a deeper understanding of life's purpose. They explore the significance of facing challenges head-on and emerging stronger, using Darrick's life circumstances as a powerful testament to resilience.

This conversation goes beyond the surface, exploring the heart of advocacy, faith, and the transformative journey of a lobbyist who is not only making a difference in the political landscape but also in the lives of those he serves. This episode is a beacon of empowerment, urging us all to reflect on our own paths and the potential for growth that lies within.

Episode Resources:

Join us as we sit down with Commissioner Gabriella Passidomo, recently reappointed to the Florida Public Service Commission by Governor Ron DeSantis. Commissioner Passidomo, a dedicated public servant, takes us through her journey from serving in the FPSC’s Office of General Counsel to becoming a crucial figure in ensuring Floridians have access to essential utilities.

A member of the National Association of Regulatory Utility Commissioners (NARUC), Gabby sheds light on her involvement in NARUC committees and task forces, emphasizing the significance of planning and safety in the realm of gas utilities. Delve into her advocacy for the Florida Telecommunications Relay Incorporated (FTRI), a service vital for those with hearing impairments, and discover her commitment to continual improvement in this crucial program.

The conversation takes a personal turn as Gabby shares insights into her experiences with disability, drawing inspiration from her grandfather's journey towards independence with the support of personal care attendants/home-aids. She discusses the importance of equity in utility services, particularly for those with lower incomes.

Tony engages Commissioner Passidomo in a candid discussion on leadership philosophy, emphasizing the values of connection, communication, and collaboration. Gain valuable insights on handling unconstructive criticism, a lesson applicable to leaders and individuals alike. Gabby's unique perspective as an ultra-athlete adds an intriguing layer to the conversation, exploring the parallels between the discipline required in athletics and its impact on one's approach to life.

Tune in for a thought-provoking exploration of leadership, advocacy, and the diverse roles Commissioner Gabriella Passidomo plays in shaping the landscape of public service and utilities in Florida.

Episode Resources:

• PSC Website: https://www.floridapsc.com/

Book Recommendations:

Join Tony Delisle on this inspiring episode as he sits down with Cammeron Smith, a dedicated professional working at the CILNCF Gainesville office, focusing on paratransit services. Cammeron's remarkable work involves reaching out to the consumers to determine their need for paratransit services, breaking down the transportation barriers that hinder individuals from accessing education, employment, and full community inclusion.

In this deeply moving conversation, Cammeron shares his personal journey into the world of disability, a journey that began with a traumatic accident that should have taken his life but didn't. He delves into the physical, mental, emotional, and spiritual challenges he faced in the aftermath of the accident and how these experiences transformed his life.

Cammeron and Tony explore the higher purpose and calling that emerged from Cammeron's circumstances. They discuss the struggles he faced while recovering and the ongoing transformation he continues to undergo. Together, they dive deep into the world of post-traumatic stress disorder (PTSD), shedding light on what it's like to be triggered into a PTSD episode and how Cammeron employs techniques to manage and overcome these distressing situations.

The conversation also touches on the crucial topic of mental health, with Cammeron candidly sharing his struggles and how he's working towards overcoming the challenges. He emphasizes the importance of establishing a daily routine as a foundation for mental well-being.

Cammeron's story is not only one of resilience but also a testament to the significance of fellowship and unity among individuals. He passionately discusses the importance of finding and creating our life's purpose, showcasing his commitment to helping others overcome their obstacles and lead independent lives.

About Cammeron:

Cammeron Smith, originally from Williston, FL, relocated to Gainesville during 7th grade, attending Fort Clarke Middle School and Buchholz High School. In high school, they studied Italian for four years, participated in marching band, and played lacrosse. His college journey began as a nursing major at Santa Fe College, simultaneously contributing to the Gator Band's drumline for two years. However, a life-altering car accident prompted a change in direction. Cammeron transitioned to IT-Security Risk Management, earning their A.S. degree in Spring 2022. Currently pursuing a Bachelor's in IST-Security, Cammeron anticipates graduating in Spring 2025. He is passionate about philosophical conversations, Star Wars, Marvel, DC, and sports. Future aspirations include living abroad to broaden their cultural horizons and fulfilling their dream of creating a comic.

Episode Resources:

Are you or someone you know in search of essential resources and services within your community to meet unique needs? If you're seeking affordable housing, medical assistance, transportation, social support, or ways to become more involved in your community, this episode is a must-listen! In this informative episode, we're delving into a remarkable solution for a pervasive challenge faced by many individuals and families in search of specialized resources and services within their communities.

Mark Fafard has dedicated his efforts to creating a revolutionary web-based tool, "My Needs Network," an interactive platform has emerged as a beacon of hope for those grappling with finding the right resources to meet their specific needs. Tony and Mark's discussion navigates the genesis of My Needs Network and how it has evolved into an indispensable resource for individuals and families, especially those living with disabilities. The real magic lies in the fact that the platform is built with the intention to be continuosly improved and innovated by the very people it serves. Feedback, insights, and experiences from users will shape the platform into a robust network brimming with diverse resources and services across various categories. But My Needs Network isn't just about locating services; it's a dynamic hub fostering connections, relationships, and empowerment. This episode unravels the platform's unique features that empower users to not only access resources but also to connect with one another, forming a supportive community that transcends the virtual realm. As Tony and Mark delve into the platform's current status and its immense potential, it's clear that the future is a tapestry woven by the community it serves. The platform's growth, evolution, and impact are intrinsically tied to the contributions of the individuals and families it caters to. Through sharing their stories, expertise, and support, users can transform into invaluable resources for others, creating a self-sustaining cycle of empowerment. "My Needs Network" is a testament to the strength of collaboration, empathy, and technology. With countless individuals seeking assistance yet unsure where to turn, this episode shines a light on the transformative power of My Needs Network in illuminating the path towards necessary resources. Tune in to uncover the captivating journey of its creation, its present impact, and the boundless possibilities it holds for a more connected and supported future. Whether you're someone in need or someone who knows someone in need, this episode hopes to help you navigate towards connecting with the necessary resources.

My Needs Network Mission:

Designed for and driven by families and caretakers, My Needs Network is a special needs specific, community-based resource platform. We provide easy to use networking tools for special needs families and organizations to connect, share and find resources. My Needs Network’s abilities and content is solely dependent on the valuable information and expertise provided by the special needs community.

My Needs Network Message:

Dear Special Needs Community: Please note, this is YOUR platform so if you have any suggestions, edits, ideas, or comments that will lead to My Needs Network working for you, please let us know. This includes but not limited to:

• Resources that need to be added to the database
• Edits to preexisting resources
• Ideas for additional tools to be added to My Needs Network
• Ideas to improve existing My Needs Network tools
• General thoughts on improving My Needs Network overall

In this captivating episode, we're joined by an inspiring individual who is making waves in the world of community engagement and empowerment. Ashlyn Michael, our Community Health Worker at The Center For Independent Living of North Central Florida, sits down with us to share her remarkable journey and shed light on the invaluable work she's been doing to foster a sense of belonging and visibility within the community.

In this candid conversation, we delve deep into Ashlyn's personal journey, navigating life with a low vision disability. Through her own experiences, she brings an unparalleled perspective on the challenges and triumphs faced by those who often go unseen. We'll learn how Ashlyn's unique insight serves as a driving force behind her passion for making a real difference.

Together, Ashlyn and Tony dive into the heart of the matter—what does "community" truly mean? Through a thought-provoking conversation, they dissect how to authentically connect, ensuring every individual feels not just included, but celebrated. And it starts with one fundamental principle: asking and understanding what people what they truly need.

Disability identity comes to the forefront as Ashlyn eloquently articulates the complexities of defining oneself within the context of disabilities. The conversation delves into the intrinsic drive to serve others and the core values that fuel Ashlyn's dedication to her work. From adaptability to social fluency, and from empathy to the innate desire to make a positive impact, listeners gain insight into the qualities that make Ashlyn's approach so effective and inspiring.

Episode Resources:

Join us for an inspiring episode as we sit down with Sean, whose life changed dramatically when he was diagnosed with Multiple Sclerosis (MS) in 2003. From facing initial misdiagnosis to navigating insurance denials, Sean's journey sheds light on the harsh realities individuals with disabilities endure. Discover how he embraced optimism and empowered himself with a positive mindset, leading to remarkable transformations. Sean's passion for writing led him to explore the legacy of Justin Dart, the Father of the Americans with Disabilities Act, and delve into the rich history of the disability rights movement. Tune in for an eye-opening conversation on courage, resilience, and the power of positivity in the face of adversity.

Meet Sean Spence, a visionary leader with an unwavering commitment to community service, organizational development, and fundraising. Throughout his career, Sean has honed his expertise in various domains, including marketing, event production, and business management, amassing an impressive track record of raising over $20 million to support critical causes.

Sean's entrepreneurial spirit has driven him to found and successfully run two ventures: The Sunrise Agency, a thriving marketing firm, and Community Events, a renowned event production company. Additionally, he contributed significantly to a $700 million e-commerce company, serving on its esteemed leadership team.

With a keen understanding of marketing and organizational building, Sean has traversed diverse roles, gaining invaluable insights along the way. Today, he channels his passion and skills to collaborate with The Salvation Army, where he actively raises funds and awareness to empower those living in poverty and facing the aftermath of disasters.

Sean Spence's journey is a testament to his dedication to making a positive impact in the world, and his determination to build a more compassionate and inclusive society.

Episode Resources:

On this episode, Tony is joined by Founder and CEO of Abilities Workshop, Jeanetta Bryant. Abilities Workshop is dedicated to serving families and caregivers to those with special needs so that they can be their best. If you have a child that has been diagnosed with Autism or another Special Needs Diagnosis, Abilities Workshop is here to help. They offer a variety of programs and workshops to help you and your family navigate this process. They also have series that have been designed for the newly diagnosed family's all the way through to families looking for ways to find success as an adult. 

Jeanetta Bryant is a dynamic and compassionate leader in the special needs community. With over 10 years of experience in the industry and 3 years with Abilities Workshop, Inc., she has dedicated her career to restoring hope and encouragement to families with children who have special needs. Her journey into this field began when her daughter was diagnosed with a medical condition. Over the last decade, Jeanetta has witnessed her child defy the odds and overcome their diagnoses, inspiring her to become an advocate, author, and speaker. She has written books, developed learning apps, and founded a non-profit organization to provide resources and support to families in need. Prior to starting her non-profit, Jeanetta had a diverse background in entrepreneurship and corporate sales, managing national accounts in a business-to-business environment. With a Bachelor's degree in Interdisciplinary Information Technology - Digital Media, she is skilled in programming, graphic design, advertising, and marketing. Jeanetta is a dreamer who believes in hard work and never giving up on a project. She is known for her honesty, thoughtfulness, compassion, quick decision-making abilities, and her willingness to constantly learn and adapt to different audiences. At Abilities Workshop, Inc, Jeanetta works with parents, pastors, and teachers to help children with special needs reach their full potential. She provides workshops, podcasts, live events, and publications to help families access the resources they need. The organization also participates in local resource fairs, events, and walks, and provides materials for other events. In her personal life, Jeanetta is a big fan of chocolate, romantic comedies, and college football (Go Noles!). But her true pride and joy is her family - her husband Matt Bryant and their two children, Jackson and Lindsey. Together, they love making memories at theme parks and simply laughing and talking in the kitchen. Overall, Jeanetta Bryant is a dedicated advocate for families with special needs and an inspiring leader in the community. She is committed to working together with others to provide support, resources, and hope to those who need it most.

In this thought-provoking episode, we are joined by Sarah Catalanotto, as we delve into the remarkable work of Area Health Education Centers (AHEC) in the state of Florida. Join us as we explore the extensive programming AHEC offers to promote health and facilitate the learning of pre-health professionals, including medical doctors, nurses, occupational therapists, physician assistants, and physical therapists.

AHEC goes beyond traditional classroom education, providing invaluable hands-on experiences that bridge the gap between theory and practice. By working with individuals facing health disparities, AHEC nurtures essential skills such as health literacy, cultural competencies, and an understanding of social determinants of health.

Our guest, Sarah, shares her personal experiences with disability and how she has channeled her knowledge and passion into serving people with disabilities through AHEC. Together, we explore the challenges faced by individuals with disabilities in navigating the healthcare system and discuss the significance of addressing these issues head-on.

As an adjunct professor at the University of Florida in the College of Public Health and Health Professions, Sarah teaches a course called Community-Based Participatory Research. At the heart of this course is discovering how to engage communities, gain their trust, and empower them to identify their needs. We explore the development of programs and policies that address these needs and discuss sustainable approaches to community health initiatives.

Throughout the conversation, we emphasize the importance of mobilizing communities to improve the health of individuals with disabilities. By empowering communities, we can tackle the root causes of preventable diseases and work towards a future where everyone can lead longer, healthier lives.

Join us for this enlightening episode as Sarah shares her insights and advice on how to navigate the healthcare system, mobilize communities, and champion the health and well-being of individuals with disabilities. Together, we can foster positive change and build a healthier, more inclusive society.

Sarah Catalanotto, MPH, CTTS, is the Executive Director at Suwannee River Area Health Education Center. Sarah has been with Suwannee River AHEC since 2011. In this role, she plans, organizes, directs, and evaluates the center’s programming and day-to-day operations. In addition, Sarah assists with grant writing and the development and management of the organization’s budgets, along with coordination of two statewide and two national associations. Prior to working at Suwannee River AHEC, she was a Tobacco Prevention Specialist within the Alachua County Health Department’s Tobacco Prevention and Control Program, and served as a Community Coordinator for the Chronic Disease Program. Sarah received her Bachelor of Art in Political Science and Sociology from Flagler College. Following her passion in healthcare and access to care, she pursed a degree in Public Health from the University of Florida College of Public Health and Health Professions.

Episode Resources

In this episode, we continue our conversation about the Florida AgrAbility project and talk about how important this program is to our farmers in Florida and to our community. If you haven't had a chance to listen to our previous episode on AgrAbility with Lindsey Head and Serap Gorucu, we highly encourage you to take a listen and learn about the Who, What, and Why of Florida AgrAbility. In this conversation, Vanessa lays the ground work for her enthusiasm for disability advocacy, as a mother of a son who has down syndrome. Vanessa Spero works for the University of Florida, Institute of Food and Agricultural Sciences Extension as a 4-H Youth Development Agent. She earned her BS from Cornell University in Animal Sciences and her MS from Florida Institute of Technology in Environmental Education. Vanessa joined extension in 2007 and has worked for extension for 15 years. Previously she had volunteered with the Peace Corps in West Africa, the Jane Goodall Institute in East Africa, and owned and operated her own non-profit in East Africa. Her interests led her to a pursue a career in non-formal education with a focus on teaching about the environment. More specifically within Extension, her programs began to focus on gardening with youth. By teaming up with the Family and Consumer Sciences Agent in Brevard (Elizabeth Shephard), she began targeting healthy eating and nutrition concepts as part of her programming. Over the years she has presented at national conferences (North American Association for Environmental Education, National Association of Extension 4-H Agents, Extension Professionals of Florida, etc.), received awards (National Extension Association of Family and Consumer Sciences Environmental Education Award, Florida Association of Extension 4-H Agents Program in Excellence Award, etc.), and secured grant funding (United Healthcare, Florida Agriculture in the Classroom, Florida Department of Agricultural and Consumer Sciences, etc.), to promote gardening and healthy eating initiatives.

Episode Resources:

• Florida 4-H: https://florida4h.ifas.ufl.edu/
• A Soccer for Success Innovation: https://ussoccerfoundation.org/blog/a-soccer-for-success-innovation/

The National AgrAbility Project is a federally-funded program that aims to help farmers, ranchers, and other agricultural workers with disabilities to continue working and living independently. The project is a collaboration between the United States Department of Agriculture (USDA) and various universities across the country. The primary goal of the National AgrAbility Project is to provide assistance to agricultural workers who have physical, cognitive, or other disabilities that may make it difficult for them to perform their work safely and efficiently. The project provides a variety of services to help these workers overcome the barriers that they may face in their work, including:

• On-site assessments: AgrAbility staff members can visit a farm or ranch to assess the needs of the worker and make recommendations for modifications to the workplace or equipment that may help them to work more comfortably and safely.
• Technical assistance: AgrAbility staff members can provide information about adaptive technology and equipment that may be useful for agricultural workers with disabilities, as well as training on how to use this equipment.
• Education and training: The National AgrAbility Project offers workshops, webinars, and other training opportunities for agricultural workers with disabilities, as well as their families and caregivers. These events cover a wide range of topics related to agriculture and disability, including assistive technology, financial planning, and workplace safety.
• Peer support: The project also provides opportunities for agricultural workers with disabilities to connect with others who have similar experiences, through support groups, mentoring programs, and other peer-to-peer support services.

Overall, the National AgrAbility Project is a valuable resource for agricultural workers with disabilities who want to continue working in the field. The project helps to ensure that these workers can work safely and efficiently, while maintaining their independence and quality of life.

In this episode, we speak with Dr. Serap Gorucu, PhD from the department of Agricultural and Biological Engineering at The University of Florida and Lindsey Head, Principal Investigator for the Florida AgrAbility Program. The National Agrability Project has been around since 1990 and is now in 21 states. This is the first time Florida has received funding for this program. Serap and Lindsey discuss why agriculture is so important for everybody, as it touches everything from food, medicine, transportation, clothes, and more. Agriculture is fundamental to our society and culture, and they delve into what farming culture is like. They also talk about why they are inspired and passionate to support those who work in agriculture. The Florida Agrability program received notice of award 8 months ago in August 2022 and now has an amazing team whose goal is to serve farmers and those who work in agriculture and have disabilities or have been injured. Agriculture is one of the most dangerous professions in the United States, making it crucial to reach out to this community, meet them, gain their trust, and better understand their needs and challenges so that they can continue farming. Serap and Lindsey both emphasize that farmers are the backbone of our society, and supporting them is essential. They talk about their “why” - why farming, why a program like this exists, and why they do it. Tune in to learn more about how the AgrAbility project is helping to support farmers and agricultural workers with disabilities, and why it is so important to continue this work.

Episode Resources:

On this powerful episode, we are joined by husband and wife, Dr. Michelle Medeiros and Dr. Henry Medeiros. They join us on the podcast to share their journey as parents raising a child with disability, specifically through the educational system. Michelle and Henry vulnerably share their experience with learning how to navigate an educational system that does more to exclude and alienate a child when they misbehave versus finding ways to understand why. They share their desperate need to find a diagnosis for their son when they came to the realization that there is a chance he could fail out of school if this continued. From their experience, they also share steps on how parents can be advocates for their children. 

Dr. Michelle Medeiros, assistant professor of Spanish in Marquette University’s Klingler College of Arts and Sciences. Michelle specializes in Latin American literary and cultural studies of the 19th and 20th centuries, gender studies, history of science, and travel writing. Her current research project explores the intersection of science, gender, and visual culture in the works of women scientists in an attempt to further unveil the complex ways in which the modern culture of scientific production developed and the role of gender in this process. She teaches a broad range of courses including literature, culture, and language arts.  

Dr. Henry Medeiros is an Associate Professor of Agricultural and Biological Engineering at the University of Florida. His research focuses on the development of novel artificial intelligence models and robotic systems to improve agricultural production.

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Nancy Hardt is known for her dedicated commitment, demonstrated leadership, innovative approaches and proven impact on improving access to primary care health services and positive health outcomes of Florida’s at-risk populations. Her innovative approaches for positively impacting health outcomes in Florida include: data to action -- providing data in a format that is both engaging and focused through hotspot density maps that depict prevalence of adverse health conditions at the census block level; place-based interventions – taking the services to underserved populations; telling the story; and providing hands-on opportunities for students to personally experience serving at-risk populations. In Alachua County, she is a leader promoting productive community collaborations to provide services to people where they live and work. Hardt has built up community assets, enhanced organizational capacity, supported training programs and fostered system change that has led to lasting policy changes to improve health.

In retirement, she collaborates with community leaders to address local health equity issues, specifically early childhood brain development as an important social determinant of adult health. A health report card for Alachua County was developed by Dr. Hardt, and key indicators were mapped, resulting in numerous community actions to respond to highlighted health inequities. She spearheaded the University response, the Mobile Outreach Clinic, in which an interprofessional team meets the needs of the underserved in neighborhoods throughout Alachua County.

In six years of operation, more than 23,000 free health care visits were provided by community health professionals, faculty, and student volunteers. This effort resulted in a significant reduction in premature births and documented cases of child abuse and neglect.

She co-founded the innovative Intimate Partner Violence Clinic in conjunction with the College of Law, in which law and medical students learn together how best to meet the needs of victims. This clinic has over 99% success obtaining orders of protection on behalf of their clients, more than twice the rate of success in this community. The law-medicine partnership led to formation of Peace4Gainesville which seeks to reduce trauma and enhance resilience for children and adults.

She serves on the statewide AIDS Education Advisory team, The Healthy and Safe Schools Coalition, Domestic Violence Fatality Review Team and Pregnancy Associated Mortality Review Team. She was a Robert Wood Johnson Health Policy Fellow serving as a health legislative advisor for U.S. Senator Jeff Bingaman and Speaker of the House Nancy Pelosi. She has served in faculty positions at the universities of Florida, Kentucky, Memphis and Tennessee. Her undergraduate degree is from Sweet Briar College and her Medical Doctorate is from Loyola Stritch School of Medicine.

Resources:

• UF Health Disparities Research and Intervention Program: https://ufhealthdisparities.med.ufl.edu/about/health-disparities-info/
• Lars and the Real Girl: https://www.imdb.com/title/tt0805564/
• Crip Camp: https://cripcamp.com/