The WMUK podcast
By WMUK
The WMUK podcastJun 09, 2021
Data and the Rory Morrison WMUK Registry
We talk to Dr Aisha Patel about the Rory Morrison WMUK Registry, the UK's patient registry for Waldenstrom's macroglobulinaemia. Dr Patel explains why collecting clinical and quality of life data is important, and how taking part in the registry can change lives.
Learn more about the registry: https://bit.ly/3Ex1vgP
Clinical trials - a WM patient perspective
Bob Perry, WMUK's Patient Support Manager, meets up with Robin Swaine who is currently on a clinical trial for WM patients. Robin talks about his personal experience of being on a trial, from how he got onto it to what it's like to be on a trial day-to-day.
Have any questions about clinical trials? We're here to help: wmuk.org.uk or email us info@wmuk.org.uk
What is the role of a CNS?
Join WMUK's Patient Support Manager, Bob Perry on the beach at Bournemouth as he chats to Julia and Dani - two Clinical Nurse Specialists (CNSs) - from Bournemouth Hospital's Haematology Department. Alongside the seagulls, they discuss what the role of a CNS is and how they are a vital connection between WM patients and other healthcare professionals, as well as recruitment for clinical trials.
Have questions about anything discussed? WMUK is here to help. Email us: support@wmuk.org.uk or visit our website: wmuk.org.uk